COVID-19 Information and Resources – Bateman Horne Center, March 2020
The Bateman Horne Center works for the medical advancement and treatment of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)and Fibromyalgia in Salt Lake City, Utah, USA.
In addition to the resources for patients and doctors on ME/CFS they have produced some briefing papers on Covid-19 and ME/CFS, many of which are helpful people from anywhere in the world.
Medical Director: Dr Lucinda Bateman
Researcher: Dr Suzanne Vernon
Medical Considerations Letter — In the event you become acutely ill, the Medical Care Considerations Letter serves as a guiding resource for outside medical care intervention. The intent of this letter is to provide care professionals with further information about your illness of ME/CFS and/or severe FM to assist them with their medical intervention decisions.
“you should assume they have a serious, chronic, multisystem illness that may negatively impact their prognosis”
“Based on current evidence the underlying pathology of ME/CFS involves energy metabolism, the nervous system, and the immune system.”
COVID-19 and ME/CFS/FM Frequently Asked Questions: Drs. Bateman and Yellman answer specific questions about COVID-19 as it relates to ME/CFS/FM.
e.g. Are people with ME/CFS/FM at a higher risk than the general public of dying from COVID-19 if contracted? … The immune dysregulation of ME/CFS/FM may reduce ability to fight viral infections. Additionally, the presence of chronic inflammation, allergies, asthma, mast-cell activation may pose additional risks.
Suzanne D. Vernon, PhD, addresses: SARS, CoV-2, and COVID-19: A scientific overview of COVID-19, infection/transmission, testing, and treatments on the horizon.
Advance Care Planning: The Advance Care Planning document provides guidance for establishing advanced-care-directives and POLST documents.
Personal Guidance and Decision Making
e.g. Advance Directives: Everyone, not just those with ME/CFS, should document end-of-life wishes on paper regarding aggressive medical care in a life-threatening situation. Discuss with family and medical professionals as needed.
Videos
- BHC Address on COVID 19
- Part I. Awareness & Preparedness – Linda Milne
- Part II. Shelter-in-Place – Linda Milne
- Coronavirus Update – Anthony Fauci, MD
- Coronavirus (COVID-19) & ME/CFS – Nancy Klimas
- How to See Germs Spread, by Mark Rober,