ME/CFS Genetics Research Symposium 2022
The symposium brought together researchers interested in ME, people with ME, carers and potential funders to drive collaboration in this field and develop a 10-year programme of ME/CFS genetics research.
Chris Ponting: The Centre of Excellence vision
Marte Viken, Researcher, Oslo University Hospital: “An immunogenetic study of ME/CFS patients”
Steve Gardner, Precision Life: ‘Genetic Risk Factors for ME/CFS identified using Combinatorial Analysis’
Kenny Baillie, Snr Clinical Research Fellow in Anaesthesia & Critical Care, University of Edinburgh: Genetics of susceptibility to critical Covid-19
Douglas Kell, Research Chair in Systems Biology, University of Liverpool: Post-exertional malaise as a Chronic Ischaemia-Reperfusion injury in Long COVID and M.E./CFS resulting from fibrin amyloid micro clots
Sian Leary and Andy Devereux-Cooke, DecodeME PPI: The Power of Patient and Public Involvement (PPI)
Plenary session: Feedback from workshops:
- What would a 10-year programme of ME/CFS genetics research and follow up studies look like? How can we drive it forward?
- How can we forge collaborative links with researchers who are not currently active in ME/CFS research?
- How do we ensure PPI is at the heart of future genetics research?
Comments on the symposium stories:
ME Research UK: Genetics Research Symposium – part 1: Profs Ponting & Viken
ME Research UK: Genetics Research Symposium – Genetics Research Symposium – part 2: Prof Ponting & Precision Life
ME/CFS Research review: New study links 14 genes to ME/CFS, by Simon McGrath, exploring the implications of the unpublished results of Precision Life’s study of ME/CFS DNA. The study identified 15 sub-groups which now needs to be replicated with larger studies on those with a clear ME diagnosis.
New Scientist: Genes may raise chronic fatigue risk
Research preprint: Genetic risk factors for ME/CFS identified using combinatorial analysis