The ME/CFS Priority Setting Partnership recruitment


The ME/CFS Priority Setting Partnership aims to identify the top ten research priorities to influence research funding in the future. Applications to join the Steering Group are open now, and will close on 5pm Monday 13 July 2020.

What is the ME/CFS PSP?

Priority Setting Partnerships (PSPs) identify and prioritise unanswered questions or evidence uncertainties that they agree are the most important. The aim of this is to make sure that health research funders are aware of the issues that matter most to the people who need to use the research in their everyday lives.

Who is involved in the PSP?

The ME/CFS PSP will be led by non-profit making initiative, the James Lind Alliance, working in partnership with UK charity Action for M.E. with representation from Forward -ME, S4ME, and UK CMRC.

Who is funding the PSP?

The Medical Research Council (MRC), the National Institute for Health Research (NIHR) and the Scottish Chief Scientist Office.

What is the PSP Steering Group

Each PSP is run by a group of around twelve people with people affected by the disease or issue, carers and clinicians.  Steering Group members must be over 18 years of age, a UK resident and have: 

  • ME/CFS themselves or 
  • An understanding of ME/CFS as a carer or clinician plus ideally 
  • Potential access to networks of people with ME/CFS, carers and clinicians

How will the PSP meet?

All meetings are expected to take place virtually through the use of Zoom every four to six weeks on average, until July/August 2021

More information:

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