OMF Launches the End ME/CFS Worldwide Tour
A Personal Note From OMF CEO Linda Tannenbaum:
Dear Friends,
Ten years ago our beautiful daughter became ill with sudden onset ME/CFS. That morning, she went to school perfectly fine. What happened during that day changed the course of our lives forever and started my husband Don and I on our journey to find a cure for this terrible disease.
Over these past 10 years, we have had the privilege to meet many who share our dream to create a world without ME/CFS.
With you in our hearts and minds, we are excited to announce that we are launching OMF’s End ME/CFS Worldwide Tour 2017 to join forces with other parents, patients and caregivers. We know that parents’ and patients’ movements are key to impacting change and we want to partner with you.
In April 2017 we will begin our tour in the US and continue it throughout the year. In May and June we have been invited to visit our friends in England, Republic of Ireland, Northern Ireland, Isle of Man, Belgium, Sweden and Norway. Several of these meetings will be with government officials and medical professionals to strengthen their knowledge of ME/CFS.
As a part of our worldwide tour, May 31 – June 2, Dr. Ron Davis, Ashley Davis Haugen (Event & Marketing) and Raeka Aiyar, PhD (Communications Director, Stanford Genome Technology Center) will join me and Don in London at the Invest in ME Research International Conference. OMF will be hosting an exhibitor table so that we can meet with friends from around the globe. If you are attending the conference, please stop by and say hello. We will share more details about our conference participation soon.
We welcome you to join us in building the End ME/CFS Worldwide Tour 2017. We invite you to join a community meeting for your area. Please check out our worldwide tour schedule.
We also would welcome the opportunity to visit other areas of the US this year. If you have an active group in the US and can gather a group of 50 or more parents, patients, caregivers, and friends, please contact us and together we can explore a visit to your area.
We look forward to seeing you in person!
Warmly,
Linda Tannenbaum
CEO/President
Open Medicine Foundation purpose:
- To fast-track revolutionary research for ME/CFS and related chronic complex diseases.
- To support collaborative scientific research to discover molecular causes, find effective treatments, diagnostic markers, prevention approaches and cures.
- To communicate, engage and inform the patient community.
- To help drive & support global collaboration.
