Flat Earth and PACE – both on the wrong side of science
PACE and geocentrism – both on the wrong side of science
Why the PACE researchers and their institutions affectation of concern for
participants is particularly sickening hypocrisy
My thoughts about the PACE trial
Tackling fears about exercise is important for ME treatment, analysis indicates [Update 1 – Tom Kindlon has written an excellent BMJ rapid response on the objective vs subjective measures with reference to a subsequent mediation analysis of the PACE trial results. Well worth a read.]
ME isn’t just ‘exercise phobia’: it’s a physical illness [Tanya Marlow, describes life with ME for those living with ME. Reading this, you can understand why patients can get frustrated or angry.]
Telling It Like It Is [Extract: The reason why ME patients react so badly to the researchers who try to impose treatments such as GET and CBT, which are normally associated with mental health conditions, is not because they have a problem with such conditions. It is because they are inappropriate for ME. Because the research which purports to prove their efficacy is riddled with flaws, many of which by themselves would be enough to invalidate the research. Taken together, these flaws should be sufficient to reduce the research to ridicule. Only the high professional standing of the researchers involved serves to stave off such derision and maintain the illusion of ‘excellent science’, just like the fabled Emperor who managed to pass off his nakedness as a fabulous suit of clothes. The use of GET and CBT for ME is based on the idea that people with ME have nothing physically wrong with them but are simply suffering from an unhelpful illusion of illness which keeps them locked in a cycle of inactivity and deconditioning. All they have to do to get out of this, so the story goes, is to let go of this illusion and slowly increase their level of activity until the deconditioning is overcome. The objection which people with ME have to this is nothing to do with a fear of the stigma of mental health. It’s because it simply isn’t true. There is ample evidence that people with ME do have something physically wrong with their bodies – and the experience of many patients who are persuaded to try GET is that far from overcoming the condition it makes them very much worse, sometimes permanently so. Their objection is not one of ‘irrationality’ but quite the opposite: it is a rational objection to a simplistic unproven hypothesis.]
“Is it About Getting Better or NOT Getting Worse?”
