PACE Trial: Reasons Queen Mary University of London gave for not releasing fitness data

Tom Kindlon reports that retired mathematics teacher, Graham McPhee, requested the numerical values (for the groups, not individuals) used to create this graph of the fitness results in the PACE Trial.

This CFS trial cost £5 million of UK taxpayers’ money.

It was previously announced that this (reasonable) request was turned down.

Graham has now released the submission Queen Mary University of London (i.e. Peter White’s university) made to the Information Commissioner’s Office asking that they not have to release the data.

You can read the reasons here.

You can read a critique of it here.

Ongoing discussion here.

APT = Adaptive Pacing Therapy
CBT = Cognitive Behavioural Therapy
GET = Graded Exercise Therapy
SMC = Specialist Medical Care (the other 3 groups also got this long with their individualised therapy)