Tag Archives: AfME

Poor medical care & neglect are major factors in ME/CFS suicide

Posted on 05/18/2016 by wames

Shout about ME blog post, by Russell Logan, 14 May 2016: Suicide risk 5 times higher in ME/CFS:  Poor medical care, neglect are major factors The risk of suicide among ME/CFS patients is a staggering five times higher than the … Continue reading →

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ME not conversion disorder, says AfME

Posted on 02/01/2016 by wames

Action for M.E. criticises psychosomatic M.E. claim, January 27, 2016 Action for M.E. has criticised an article on Psych Central claiming M.E./CFS is a psychosomatic illness and the result of conversion disorder. [the article has since been removed] In their comment … Continue reading →

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CMRC conference: watch from home 13, 14 Oct 2015

Posted on 10/10/2015 by wames

On behalf of the UK CFS/ME Research Collaborative (CMRC), Action for M.E. will livestream some of the 2015 CMRC’s annual research conference on Tuesday 13 and Wednesday 14 October, which means you can watch it live on your computer at … Continue reading →

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Do people with ME and CFS really recover?

Posted on 10/05/2015 by wames

The Recovery Question, by Dan Neuffer in Health Rising Forum, Sep 17 2015 There is much information out there on how to diagnose Fibromyalgia Syndrome (FMS) or Chronic Fatigue Syndrome (CFS) (also described as Myalgic Encephalomyelitis or ME). And whilst … Continue reading →

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Patients’ ME research priorities

Posted on 09/30/2015 by wames

Research abstract: Background: The aim of this work was to involve patients in setting future priorities for myalgic encephalomyelitis (M.E.) research. Methods: A national on-line survey was developed collecting structured and unstructured data. Respondents were asked what they considered Action … Continue reading →

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Tell your story!

Posted on 03/03/2015 by wames

During 2015 there will be many opportunities for WAMES to share the stories of people with ME when talking with Health Boards and health professionals. We will be inviting some people to do this in person at meetings, but we … Continue reading →

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How surveys on CFS and ME fail

Posted on 06/18/2014 by wames

Erica Verillo comments in her blog on the CFS treatment guide website: Action for ME published two reports during ME Awareness Week (May 11 to 17) 2014. The survey was based on responses from more than 2,000 Action for ME members … Continue reading →

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Importance of medical evidence for benefits claims

Posted on 09/22/2013 by wames

Action for ME has produced a factsheet to help GPs understand why their medical evidence is so important in supporting benefits claims and appeals. If your practice is reluctant to provide such information or makes a substantial charge for it, consider giving … Continue reading →

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