Tag Archives: Australia

35 year-old living in aged care reveals what life is like inside during this pandemic (Aus)

ME Awareness week: Thirty-five-year-old living in aged care reveals what life is like inside during this pandemic   From SBS News Insight (Australia) by Ketra Wooding, 9 May 2020: Ketra has been forced to live in an aged care facility due … Continue reading

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Self-management of CFS in adolescents

Self-Management of Chronic Fatigue Syndrome in adolescents, by Katherine Rowe, Amanda Apple and Fiona McDonald in Paediatric Neurology [Working Title] Published online: February 28th 2020 [DOI: 10.5772/intechopen.91413]   Book chapter abstract: Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) … Continue reading

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Health-related quality of life in patients with ME/CFS: an Australian cross-sectional study

Health-related quality of life in patients with myalgic encephalomyelitis/chronic fatigue syndrome: an Australian cross-sectional study, by N Eaton-Fitch, SC Johnston, P Zalewski, D Staines & S Marshall-Gradisnik in Quality of Life Research, 22 January 2020   Research abstract: Background: Myalgic … Continue reading

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Epidemiology of paediatric CFS in Australia

Epidemiology of paediatric chronic fatigue syndrome in Australia, by Sarah Knight, Shane Elders, Jill Rodda, Adrienne Harvey, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Susan Towns, Kasia Kozlowska, Donald N Payne, Sonya Marshall-Gradisnik, Adam Scheinberg in Archives of Disease … Continue reading

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New Australian genetic marker detection study

ME Research UK blog post, 6 November 2016: New study – Genetic marker detection Prof Brett Lidbury and colleagues at the John Curtin School of Medical Research, Australian National University in Canberra are conducting an ongoing programme, funded by charities in … Continue reading

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Severe ME in Australia: suffering ignored and denied help

ME Australia blog post, by Sasha Nimmo, 13 September 2016: Severe ME: Suffering ignored and denied help Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian … Continue reading

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Metabolomic study finds amino acid deprivation impacts pain in ME/CFS

ME Australia blog post: Metabolomic study finds amino acid deprivation impacts pain, by Sasha Nimmo, 1 September 2016 A team of Australian scientists looked at biochemistry changes connected with pain and kidney function, identifying the biological basis of the development of widespread pain (July 2016). … Continue reading

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Three approaches to CFS in the UK, Australia, & Canada: lessons for democratic policy

Research abstract: Decisions about diagnostic categories through clinical practice guidelines (CPGs) represent a central type of informal policy-making which affect the scope of publicly-regulated health services and directions for future research. We examine the development of three diverse sets of CPGs for chronic fatigue … Continue reading

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Six year study of abnormal brain changes in ME/CFS

ME Australia blog post, by  Sasha Nimmo, 12 July 2016: Six year study of abnormal brain changes in chronic fatigue syndrome patients An Australian six year study evaluating progressive brain changes associated with chronic fatigue syndrome (Fukuda and Canadian Consensus … Continue reading

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Epidemiological characteristics of CFS/ME in Australian patients

Research abstract: Background: No epidemiological investigations have previously been conducted in Australia according to the current clinical definitions of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). The aim of this study was to describe sociodemographic and illness characteristics of Australian patients with … Continue reading

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