Tag Archives: clinical guidelines

Research: Orthostatic Intolerance & neurocognitive impairment overlap in ME/CFS

Orthostatic Intolerance & neurocognitive impairment overlap in ME/CFS   Prof Jason Leonard and US colleagues investigated the relationship between Orthostatic Intolerance and neurocognitive impairment in ME/CFS Orthostatic intolerance (OI) is the development of symptoms when standing upright that are relieved … Continue reading

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What should health professionals #LearnFromME?

ME is a global health crisis Health professionals can #LearnFromME   Up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this … Continue reading

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US ME/CFS clinician coalition recommendations for ME/CFS testing & treatment

US ME/CFS Clinician Coalition Recommendations for ME/CFS Testing and Treatment, April 13, 2021   In its July 2020 handout on ME/CFS diagnosis and treatment, the US ME/CFS Clinician Coalition summarized the alternative diagnoses and comorbidities that need to be evaluated … Continue reading

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NICE ME/CFS Guideline to be published April 2021

NICE ME/CFS Guideline to be published April 2021   WAMES has received notification from NICE about the dates the stakeholder meetings will reconvene, and the proposed publication date of the revised ME/CFS clinical guideline.   24/6/20 Dear Stakeholder, As you … Continue reading

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ME/CFS: investigating care practices pointed out to disparities in diagnosis & treatment across European Union

Myalgic encephalomyelitis/chronic fatigue Syndrome (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union Elin B Strand, Luis Nacul, Anne Marit Mengshoel, Ingrid B Helland, Patricia Grabowski, Angelika Krumina, Jose Alegre-Martin, Magdalena Efrim-Budisteanu, Slobodan Sekulic, … Continue reading

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Initiating care of a patient with ME/CFS

Initiating care of a patient with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), by Charles W. Lapp in Front. Pediatr., [Published 23 January 2019]   Article abstract: This paper introduces the primary care physician to the unique and challenging aspects of initially … Continue reading

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ME, CFS & SEID: three distinct clinical entities?

Article abstract: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities, by Frank N M Twisk in Open Access Challenges 2018, 9(1), 19 [Published: 13 April 2018] Many researchers consider chronic fatigue syndrome (CFS) to be a synonym … Continue reading

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ME/CFS: what every family physician needs to know

Article extract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: what every family  physician needs to know, by Mary Dimmock, Susan Levine, MD, and Terri L. Wilder, MSW in Family Doctor (journal of New York State Academy of Family Physicians) Winter 2018 6:3 pp 23-25 The onset … Continue reading

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Guidelines for children with ME now available to download

Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: a primer, 2017 Edition This primer was compiled and published in June 2017 by the International Writing Group for Pediatric ME/CFS. It was originally published as a review article based in Frontiers in … Continue reading

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Three approaches to CFS in the UK, Australia, & Canada: lessons for democratic policy

Research abstract: Decisions about diagnostic categories through clinical practice guidelines (CPGs) represent a central type of informal policy-making which affect the scope of publicly-regulated health services and directions for future research. We examine the development of three diverse sets of CPGs for chronic fatigue … Continue reading

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