Tag Archives: data sharing
PACE-gate: when clinical trial evidence meets open data access
Article abstract: Science is not always plain sailing and sometimes the voyage is across an angry sea. A recent clinical trial of treatments for chronic fatigue syndrome (the PACE trial) has whipped up a storm of controversy. Patients claim the … Continue reading
Prof Peter White says: If my team’s research on ME is rejected, the patients will suffer
Guardian opinion piece, by Peter White, 20 September 2016: ‘If my team’s research on ME is rejected, the patients will suffer’ Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and … Continue reading
Probing an untrustworthy Cochrane review of exercise for CFS
Blog post by Prof James C Coyne, 23 April 2016: Probing an untrustworthy Cochrane review of exercise for “chronic fatigue syndrome” From my work in progress: My ongoing investigation so far has revealed that the 2016 Cochrane review misrepresents what … Continue reading
PLOS One journal restates position on data sharing to Prof Coyne
In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting an … Continue reading
PLOS One journal asks researchers for release of PACE trial data
The PACE trial researchers published an article in PLOS One in 2012, a journal that requires authors to allow other researchers access to their data. PLOS ONE notice: Update on follow up, 7 Mar 2016 PLOS ONE is actively following up … Continue reading
WAMES writes in support of releasing PACE trial data
Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading
PLOS One to investigate PACE trial’s refusal to share data
Response from PLOS One editors to requests for more information about the PACE trial: Several readers have raised concerns regarding the analyses reported in this article. We are also aware that there have been requests for the data from this … Continue reading
Prof Coyne’s PACE trial FOI request refused as considered ‘vexatious’
Prof James Coyne has received a reply from the authors of the PACE trial refusing access to data: 11 December 2015 Dear Professor Coyne, Request for information under the Freedom of Information Act 2000 (“the Act”) Further to your recent … Continue reading
