Tag Archives: data sharing
PACE-gate: when clinical trial evidence meets open data access
Article abstract: Science is not always plain sailing and sometimes the voyage is across an angry sea. A recent clinical trial of treatments for chronic fatigue syndrome (the PACE trial) has whipped up a storm of controversy. Patients claim the … Continue reading
Prof Peter White says: If my team’s research on ME is rejected, the patients will suffer
Guardian opinion piece, by Peter White, 20 September 2016: ‘If my team’s research on ME is rejected, the patients will suffer’ Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and … Continue reading
WAMES writes in support of releasing PACE trial data
Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading
