Tag Archives: illness experience
‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME
Research abstract: ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Widerøe Njølstad, Anne Marit Mengshoel & Unni Sveen in Scand J Occup Ther. 2018 Apr 1:1-10. … Continue reading
Posted in News
Tagged adolescents, Anne Marit Mengshoel, Berit Widerøe Njølstad, illness experience, NorCAPITAL project, teenagers, Unni Sveen, young people
Comments Off on ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME
What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
Posted in News
Tagged adolescents, children, Dr Esther Crawley, illness experience, Patient-Reported Outcome Measures, PROMS, teenagers
Comments Off on What matters to children with CFS/ME? devising a PROM
