Tag Archives: #ImplementNICEmecfs

Do I need a formal diagnosis of ME/CFS?

Posted on 09/23/2022 by wames

Do you have a diagnosis of ME or CFS from the NHS?   For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading →

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Powys Health Board defends their ME/CFS services

Posted on 08/12/2022 by wames

Powys Health Board say they are committed to using NICE guidance   WAMES has been asking Health Boards in Wales what plans they have to implement the new NICE guidelines, whether they intend to consult with patients and how they … Continue reading →

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Report says neuro services are at crisis point in Wales

Posted on 07/29/2022 by wames

My Neuro survey Wales report 2022 from the WNA   Whilst we are cognisant that the pandemic has brought with it unprecedented demand on all health and social services, two years hence, the situation for people living with neurological conditions … Continue reading →

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Rethinking ME: a report by the All-Party Parliamentary Group on Myalgic Encephalomyelitis

Posted on 05/25/2022 by wames

APPG on ME Report: Rethinking ME   The All Party Parliamentary Group on ME launched their report ‘Rethinking ME’ on Wed 25 May 2022 with the support of Sajid David MP, the UK Parliament Secretary of State for Health and … Continue reading →

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Make a poster for World ME day!

Posted on 04/29/2022 by wames

World ME Day custom poster maker goes live – what will you create?   Can posters, articles, posts, tweets create change?   Yes, if they show how many people are impacted by ME, and what that means. People with ME, … Continue reading →

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Welsh Government responds & asks if NICE is being implemented

Posted on 03/21/2022 by wames

Welsh Government replies to WAMES   WAMES wrote to the Health Minister on 8 February asking why an announcement had been made about services for recent patients with long COVID, but not about services for people who have been living … Continue reading →

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#LearnFromME – theme for #WorldMEDay

Posted on 02/28/2022 by wames

#LearnFromME on #WorldMEday     2022 is set to be another year of a global health crisis that has caused a wave of post-viral disease, specifically the collection of symptoms known as “Long COVID” which overlap with ME. For decades … Continue reading →

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