Tag Archives: #LearnFromME

Pacing my way through Pain Clinic

Avoiding PEM by pacing my way through Pain Clinic   PF gives her experience of an ME/CFS friendly way of attending a Pain Clinic in south Wales. As my referral to the Pain Clinic was made during Covid lockdown I … Continue reading

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PEM: Running out of battery & feeling intensely unwell: a carer’s perspective

PEM: Running out of battery & feeling intensely unwell: a carer’s perspective   I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading

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Video yourself for World ME Day 2023!

Call-to-action: Video yourself for World ME Day 2023! Follow Holly’s example and tell the world what happens when pushing harder makes you sicker,  for World ME Day on May 12th. ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects … Continue reading

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New fact sheet on ME from the WMEA

Myalgic Encephalomyelitis factsheet   WAMES has been working with ME organisations around the world to produce a new fact sheet on Myalgic Encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in a growing number of languages, we … Continue reading

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World ME day 2023 – theme: PEM

2023 World ME Day campaign announced   From the World ME Alliance: The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people … Continue reading

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#LearnFromME – theme for #WorldMEDay

#LearnFromME on #WorldMEday     2022 is set to be another year of a global health crisis that has caused a wave of post-viral disease, specifically the collection of symptoms known as “Long COVID” which overlap with ME. For decades … Continue reading

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Announcing the first ever World ME day – May 12th 2022

#WorldMEday 2022   The World ME Alliance, a collaborative of national organisations from across the globe, is launching World ME Day on 12th May this year. All organisations everywhere are invited to join this effort to raise awareness and campaign … Continue reading

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