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QMUL announces they will release the PACE data
ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading
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Tagged Alem Matthees, Alex Anderssen, David Tuller, ME Action, PACE trial, QMUL, Queen Mary University of London, Tom Kindlon
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Add your voice to the Millions Missing thunderclap
ME Action blog post, 1 September 2016: Add your voice to the missing millions thunderclap The #MillionsMissing are using Thunderclap to amplify our message. Between now and September 27, sign up here and promote your participation on social media. If … Continue reading
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Tagged #MillionsMissing, ME Action, social media, Thunderclap
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PACE-Gate: an update for ME Awareness day
Occupy CFS/ME blog post by Jennie Spotila 12 May 2016: PACE-Gate It is International ME/CFS Awareness Day, and what is most on my mind is the status of PACE-Gate: the controversy over the design, conduct and results of the PACE trial. … Continue reading
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Tagged David Tuller, Dr Richard Horton, Dr Vincent R Racaniello, Jennie Spotilla, Kings College London, Lancet, ME Action, ME Actiopn, PACE trial, PLOS One, Prof James C Coyne, Queen MAry University London, Retraction Watch, Valerie Eliot Smith
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#MillionsMissing poetry competition for ME Awareness 2016
#MEAction is seeking poems to honour those around the world struggling with M.E. This call to poets is designed to complement other awareness projects taking place during May. Our goal is to proudly display the creative resources of our community … Continue reading
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Tagged #Missingmillions, ME Action, ME Awareness, poetry competition
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10 organisations call for PACE data release, AYME refuses
ME Action article, 6 March 2016: Ten organisations call for PACE data release, AYME refuses Ten organisations so far have joined ME/CFS patient Clark Ellis’s call to Queen Mary University of London (QMUL) to release data from the PACE trial … Continue reading
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Tagged AYME, data sharing, Information Commissioner’s Office, ME Action, PACE trial
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ME Action petition for more funding for research in UK
ME Action article: 10,000 signatures for more research funding in the UK! Calling all British M.E. sufferers & allies, Inspired by our American friends and the progress that has been made over in the States with government funding and new … Continue reading
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Tagged e-petition, ME Action, research funding
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Tuller’s questions about the PACE trial
ME Action reports: Journalist and public health expert Dr. David Tuller published on Virology Blog a list of 68 questions for the authors of the controversial PACE trial. The trial studied the effects of graded exercise and cognitive therapy on chronic … Continue reading
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Tagged David Tuller, ME Action, PACE trial
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Prof Coyne’s PACE trial FOI request refused as considered ‘vexatious’
Prof James Coyne has received a reply from the authors of the PACE trial refusing access to data: 11 December 2015 Dear Professor Coyne, Request for information under the Freedom of Information Act 2000 (“the Act”) Further to your recent … Continue reading
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Tagged data sharing, FOI, Freedom of Information request, ME Action, PACE trial, Prof James C Coyne
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12 US organisations lobby CDC about PACE trial
Solve ME/CFS Initiative Calls for Review of PACE Trial 20 Nov 2015 The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for … Continue reading
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Tagged David Tuller, Inc., Institute of Medicine, IOM, Massachusetts CFIDS/ME & FM Association, ME Action, MEadvocacy.Org, New Jersey ME/CFS Association, Open Medicine Foundation, PACE trial, Pathways to prevention report, Phoenix Rising, ProHealth, Solve ME/CFS Initiative, Speak Up About ME, Vermont CFIDS Association, Wisconsin ME and CFS Association
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Swedish clinic under scrutiny for treating ME & FM as physical illnesses
ME Action blog report: Save the Gottfries Clinic Gottfries, the leading clinic in Sweden for ME/CFS and Fibromyalgia has come under government scrutiny for treating patients using a “biomedical” approach. Politicians in Gothenburg have decided not to renew its contract … Continue reading
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Tagged Carl-Gerhard Gottfries, ME Action, Sweden
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