Tag Archives: NICE guideline ME/CFS
Welsh Government responds & asks if NICE is being implemented
Welsh Government replies to WAMES WAMES wrote to the Health Minister on 8 February asking why an announcement had been made about services for recent patients with long COVID, but not about services for people who have been living … Continue reading
NICE will announce guideline decision next week
NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). … Continue reading
Legal challenge to NICE ME/CFS Guideline delay
Legal challenge to NICE ‘pause in publication’ On the 1st October a legal action was launched against NICE, claiming the failure to publish the final guideline for ME/CFS was unlawful – that NICE failed to follow it’s own rules … Continue reading
WAMES responds to NICE ’roundtable’ announcement
WAMES writes to NICE re ‘Roundtable event’ On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders … Continue reading
WAMES ponders the NICE guideline shockwave
WAMES ponders the NICE guideline shockwave How far will it extend? People with ME/CFS have been looking forward to the publication of the revised NICE guideline on 18th August 2021, since the review process began in early 2018. Frustratingly … Continue reading
WAMES writes to NICE
WAMES writes to NICE about publication delays The shock of yesterday’s announcement from NICE, ‘pausing’ publication of the ME/CFS guideline, was followed up this morning when there was still no announcement about what was to happen next. Are they … Continue reading
Medical school education on ME
Medical school education on Myalgic Encephalomyelitis, by Nina Muirhead, John Muirhead, Grace Lavery and Ben Marsh in Medicina 2021, 57(6), 542; [doi.org/10.3390/medicina57060542] 28 May 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis) Research abstract: … Continue reading
The PACE trial should be retracted because it was seriously unethical
The PACE trial should be retracted, because it was seriously unethical, and the lead investigators continue to deny that, by Dr Neil McFarlane in DrNMblog, 19 March 2021 This was submitted (December 2020) to NICE in response to the new … Continue reading
WAMES response to draft NICE ME/CFS guideline
WAMES response to draft NICE ME/CFS guideline This week WAMES sent in our response to the ME/CFS guideline consultation. Thanks to all who sent us their comments on the guideline and to those who have shared their stories and … Continue reading
