Tag Archives: Norway
Video: ME & PEM (Post Exertional Malaise)
ME & PEM: English language video from Norway This 3 minute film will give you an introduction to PEM (Post Exertional Malaise). Once you’ve understood what PEM is about, you’ll know a lot more about the debilitating chronic disease … Continue reading
Norwegian Rituximab studies update
Helse Bergen blog post, 29 Sep 29017: RituxME B-lymphocyte depletion using the anti-CD20 antibody rituximab (Mabthera®) in Myalgic Encephalopathy/Chronic Fatigue Syndrome (“RituxME”) RituxME is a multicentre study conducted in five study centres in Norway: the Oncology Department at Haukeland University … Continue reading
Adults’ experiences of the illness trajectory in post-infectious fatigue syndrome in Norway
Research abstract: From good health to illness with post-infectious fatigue syndrome: a qualitative study of adults’ experiences of the illness trajectory, by Eva Stormorken, Leonard A. Jason and Marit Kirkevold in BMC Family Practice 2017 18:49 [PNorwayublished: 27 March 2017] Background: Municipal drinking water contaminated with the parasite Giardia lamblia in Bergen, Norway, … Continue reading
Experiences of GP continuity among women with CFS/ME in Norway
Research abstract: Background: Continuity of care is important for patients with chronic illness in need of coordinated healthcare services from multiple providers. Little is known about how patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience continuity of GP care. This study explores how … Continue reading
New rituximab trial results from Norway
Research abstract: Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) is a disease of unknown etiology. We have previously suggested clinical benefit from B-cell depletion using the monoclonal anti-CD20 antibody rituximab in a randomized and placebo-controlled study. Prolonged responses were then demonstrated in … Continue reading
A robot-avatar: easier access to education & reduction in isolation?
Research abstract: This paper presents a qualitative study of deployment and use of a robot as a sick child’s avatar at school. Many children and youth suffer from a range of chronic illnesses that make them, often for long stretches … Continue reading
Unexpected findings & promoting monocausal claims, a cautionary tale
Article abstract: Stories of serendipitous discoveries in medicine incorrectly imply that the path from an unexpected observation to major discovery is straightforward or guaranteed. In this paper, I examine a case from the field of research about chronic fatigue syndrome (CFS). In Norway, … Continue reading
The social media experiences of long-term patients with ME in Norway
Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading
Evaluation of a Norwegian approach to investigating suspected CFS/ME
Article introduction: BACKGROUND: Chronic fatigue is a frequently occurring problem in both the primary and specialist health services. The Department of Neurology at Haukeland University Hospital has established a standard assessment for patients referred with suspected CFS/ME. This study reports … Continue reading
Women assess quality of healthcare services in Norway
Research abstract: Objective: To test the association between self-rated health and self-rated degree of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), and CFS/ME patients’ assessment of quality of primary care, specialist care and coordination of care. Design: Cross-sectional study. Setting: Self-reported questionnaire … Continue reading
