Tag Archives: recovery
Specialist treatment of CFS/ME: a cohort study among adult patients in England
Research abstract: Specialist treatment of chronic fatigue syndrome/ME: A cohort study among adult patients in England, by Simon M Collin, Esther Crawley in BMC Health Services Research Vol. 17, p 488 [published July 14, 2017] Background: NHS specialist chronic fatigue syndrome (CFS/ME) services … Continue reading
PACE trial claims of recovery are not justified by the data: a rejoinder to Sharpe, Chalder, Johnson, Goldsmith & White
Following a response from the PACE trial researchers to their re-analysis from the PACE trial researchers Wilshire et al have published a reply: Article abstract: BACKGROUND: Recently, we critically evaluated the claim from the PACE trial that cognitive behavioural therapy (CBT) and graded … Continue reading
The full independent re-analysis of the PACE Trial now available on open access
ME Association blog post, 22 March 2017: Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper, 22 March 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the … Continue reading
‘Betwixt & between’ liminality in recovery stories from people with ME or CFS
Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading
Recovering from CFS & FM – The Lerner Way
Health rising blog post, by Cort Johnson, Aug 12, 2016: Recovering from Chronic Fatigue Syndrome and Fibromyalgia – The Lerner Way Recovery Recoveries or near recoveries from chronic fatigue syndrome (ME/CFS) and/or fibromyalgia don’t happen often but they do occur. … Continue reading
Dr Fred Friedberg on the meaning of ‘recovery’ in the PACE trial
Dr Fred Friedberg, IACFS/ME President comments: In a significant development regarding the controversial PACE trial, the largest and most influential behavioral treatment trial of CFS/ME to date, a recent open letter to the editor of the Lancet was published by a distinguished group of … Continue reading
Do people with ME and CFS really recover?
The Recovery Question, by Dan Neuffer in Health Rising Forum, Sep 17 2015 There is much information out there on how to diagnose Fibromyalgia Syndrome (FMS) or Chronic Fatigue Syndrome (CFS) (also described as Myalgic Encephalomyelitis or ME). And whilst … Continue reading
Defining recovery in children
Research abstract: Aims: To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods: We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading
Good recovery rates for ME/CFS following Glandular fever
Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath in his blog Phoenix Rising shares results from a long-term follow-up study from Haukeland University Hospital in Norway … “When will this end?” It’s a question that most ME/CFS patients have … Continue reading
Defining recovery in CFS
Abstract INTRODUCTION: Adamowicz et al. have reviewed criteria previously employed to define recovery in chronic fatigue syndrome (CFS). They suggested such criteria have generally lacked stringency and consistency between studies and recommended future research should require “normalization of symptoms and … Continue reading
