Tag Archives: Stonebird
With severe ME, everything is cut off from possibility
by Greg Crowhurst, Stonebird
Severe ME: complex, unpredictable symptoms
Stonebird – the lived experience of severe ME
Severe ME day- 8 August 2019
Severe ME Day – 8th of August 2019 A day to remember everyone who is suffering or who has ever suffered from severe and very severe Myalgic Encephalomyelitis. The 25% Group offers support for severe ME. They have published a … Continue reading
August 8th 2018: Understanding & Remembrance Day for Severe ME
August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading
Severe ME remembrance day, 8 August 2017
Stonebird: the experience of severe ME At the Stonebird website you can find resources to help you understand the experience of severe ME and how to care for people with it. The Stonebird represents the idea that you don’t have to … Continue reading
Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands
Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading
2016 – In remembrance
Yet still I must demand and demand again. Their death demands we ask for integrity and truth. But there is so little of it out there All lost in compromise or outright denial and ignorance. The dead grow, Shockingly. Loved … Continue reading
Paralysis in ME
Study abstract Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for … Continue reading
