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Latest News
- Hypothesis: Broken connections: the evidence for neuroglial failure in ME/CFS
- Research review: The enterovirus theory of disease etiology in ME/CFS
- NICE delays Roundtable – no invite for WAMES!
- Genetic research: Fine mapping of the major histocompatibility complex (MHC) in ME/CFS
- Research: A map of metabolic phenotypes in patients with ME/CFS
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Tag Archives: video
Video: Living with ME/CFS: a paper stop-motion animation
An Existence Project: paper stop-motion animation about ME/CFS, 2 April 2021 An Existence Project is a short stop-motion animation about what it is like to live with mild or moderate Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). It was … Continue reading
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Tagged Inga Topolnicki, living, paper stop-motion animation, video
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Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients
Dialogues ME-CFS video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients. A new 16 minute video has been published in the Severe ME series on the Dialogues ME-CFS website Contributers include: Dr Nigel Speight, Dr Luis … Continue reading
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Tagged Dialogues ME-CFS, Dr Luis Nacul, Dr Nigel Speight, hospital admissions, severe ME, video
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Video: I got a virus, I didn’t die, but I never recovered
ME Awareness Week: I got a virus, I didn’t die, but I never recovered #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading
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Tagged Dr Nina Muirhead, ME Awareness, MEAction, Prof Chris Ponting, video
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Video: ME & PEM (Post Exertional Malaise)
ME & PEM: English language video from Norway This 3 minute film will give you an introduction to PEM (Post Exertional Malaise). Once you’ve understood what PEM is about, you’ll know a lot more about the debilitating chronic disease … Continue reading
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Tagged Ketil Jakobsen, Norway, PEM, Post-exertional malaise, Prof Kristian Sommerfelt, video
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ME: a global health scandal – Stop ignoring ME video – ME Awareness week 2019
ME: a global health scandal People with ME are not asking for special treatment. We are asking for humane treatment and health equality. ME Awareness week 6th – 12th May 2019 Produced by Broken Battery, 2 May 2019 ME is … Continue reading
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Tagged #HelpNHSbeMEaware, #StopIgnoringME, #TimeForUnrestWales, Broken battery production, health equality, video
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M.E.: ‘an insane idea’ – an animation by Alexandra Hohner
M.E. – ‘an insane idea’ – an animation by Alexandra Hohner An award winning short animation by Alexandra Hohner uses interviews with a young man who developed ME/CFS following a giardia infection. She says ” The experiment is based on the idea … Continue reading
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Tagged Alexandra Hohner, animation, video
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UK Rituximab trial collaboration between Norway & UK featured on BBC
BBC Look East video clip, 26 January 2017: Research in Norwich could offer ME/CFS breakthrough Researchers in Norwich are teaming up with researchers from Norway to collaborate on ME/CFS research. The researchers say they believe that ME is reversible, and … Continue reading
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Tagged BBC Look East, Dr Oystein Fluge, Invest in ME, Norway, Norwich, Prof Simon Carding, rituximab, video
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The RituxME & CycloME studies – video of Dr Oystein Fluge talk
Video posted on the RME Sverige You Tube channel, 19 Nov 2016: The RituxME and CycloME studies – Ongoing Clinical Research in the ME/CFS Research Group, by Öystein Fluge, MD, Dep. Oncology and Medical Physics, Haukeland University Hospital, Bergen, Norge … Continue reading
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Tagged Cyclophosphamide, Dr Oystein Fluge, rituximab, RME Sverige, video
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Video interview with parent Mary Dimmock about her son and rituximab
Episode 78 of Llewellyn King’s ME/CFS Alert videos interviews Mary Dimmock, whose son has ME and who is receiving RITUXAN (rituximab) treatment privately. (24 mins)
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Tagged Llewellyn King, Mary Dimmock, ME/CFS Alert, rituxan, rituximab, video
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Evette’s life with ME – a living torture
Severely affected Evette describes having ME as a living torture in ITV news on 30 October 2015. Reporter Rob Osborne interviews Christalla Davies from support group MESiG and a local doctor about the seriousness of ME. Youtube video [2 mins 48 secs]
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Tagged Christalla Davies, MESiG, Newsweek Wales, Rob Osborne, video
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