Tag Archives: young people

Challenging claims that fearful avoidance beliefs about activity in ME & CFS can be targeted with CBT/GET.

Cognitive-behavorial and graded exercise therapies for chronic fatigue (syndrome) are associated with lower levels of work/school attendance, by Frank N M Twisk in J Behav Med [Published online 28 March 2019] Psychological and demographic factors associated with fatigue and social … Continue reading

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Associations between autonomic & orthostatic self-report and physician ratings of Orthostatic Intolerance in youth

Associations between autonomic and orthostatic self-report and physician ratings of Orthostatic Intolerance in youth, by Katlin R Schultz, Ben Z Katz, Neil R Bockian, Leonard A Jason in Clinical Therapeutics 2019 Research abstract: Purpose: There is no known biological marker or physical assessment … Continue reading

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Understanding ME & CFS symptoms in children – take part in research project!

Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading

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Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations

Passive standing tests for the office diagnosis of postural tachycardia syndrome: new methodological considerations, by Maria Roma, Colleen L. Marden & Peter C. Rowe in Fatigue: Biomedicine, Health & Behavior 2018 [Published online: 25 Aug 2018] Research abstract: Background: Passive standing tests … Continue reading

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Operationalizing substantial reduction in functioning among young adults with CFS

Research abstract: Operationalizing Substantial Reduction in Functioning Among Young Adults with Chronic Fatigue Syndrome, by Kristen D. Gleason, Jamie Stoothoff, Damani McClellan, Sttephanie McManimen, Taylor Thorpe, Ben Z. Katz, Leonard A. Jason in International Journal of Behavioral Medicine 2018 pp1-8 [Published online 5 June 2018] Purpose: Chronic fatigue syndrome and myalgic … Continue reading

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‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME

Research abstract: ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Widerøe Njølstad, Anne Marit Mengshoel & Unni Sveen in Scand J Occup Ther. 2018 Apr 1:1-10. … Continue reading

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Measuring school functioning in students with CFS

Review abstract: Measuring school functioning in students with Chronic Fatigue Syndrome: a systematic review, by Michelle Tollit, Jennifer Politis, Sarah Knight in J Sch Health. 2018 Jan; 88(1):74-89. [published online 17 Dec 2017] BACKGROUND: It is often surmised that school functioning … Continue reading

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Guidelines for children with ME now available to download

Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: a primer, 2017 Edition This primer was compiled and published in June 2017 by the International Writing Group for Pediatric ME/CFS. It was originally published as a review article based in Frontiers in … Continue reading

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Transforming growth factor beta (TGF-β) in adolescent CFS

Research abstract: Transforming growth factor beta (TGF-β) in adolescent chronic fatigue syndrome by VB Wyller, CB Nguyen, JA Ludviksen, TE Mollnes in J Transl Med. 2017 Dec 4;15(1):245 BACKGROUND: Chronic fatigue syndrome (CFS) is a prevalent and disabling condition among adolescents. The … Continue reading

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30% school absence due to ME in Norway

Phoenix rising forum post, 6 Feb 2017: Norwegian prime minister concerned about young ME-patients. Norwegian media have reported several places today the prime minister’s concern for young ME patients. Last year she asked Ministry of Health and Care Services to … Continue reading

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