House of Commons debate on ME

Date: Thursday  January 24, 2019

Time: afternoon (5th item of business for the day)

Topic: Debate on a motion relating to appropriate ME treatment

Watch on parliamentlive TV

The Motion: “That this House calls on the Government to:

  • provide increased funding for biomedical research into the diagnosis and treatment of ME,
  • supports the suspension of Graded Exercise Therapy and Cognitive Behaviour Therapy as means of treatment,
  • supports updated training of GPs and medical professionals to ensure they are equipped with clear guidance on diagnosis of ME and appropriate management advice to reflect international consensus on best practice,
  • and is concerned about the current trends of subjecting ME families to unjustified child protection procedures”.

Join the virtual demonstration from 11am GMT

post a photo of yourself with supporting sign to social media

Background to House of Commons debate with Carol Monaghan MP

Read Stuart Murdoch’s open letter (singer with Belle & Sebastian) to the UK government

…Why ME? Why us? We respectfully ask why we have been ignored and left to rot. (And I do not exaggerate by saying ‘rot’. There is real suffering happening, long slow physical and psychological pain, day in day out, for so many.) Surely something can be done…

…We feel the tide is turning, and that ME is coming into the light. We just want you to get behind us. We don’t want you to do all the work, we just want a little shove, a little help, so that we can get going again. We are your ideal citizenry, we promise! If you can get us healthy again…

 

 

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