PatientView and Health 2.0 are undertaking a short survey which is an opportunity for patients and carers to tell app developers how health apps can be improved to better meet the needs of patients and carers.
The survey is open to anybody who is living with illnesses or conditions that last many years (or even a lifetime), and to the carers of people living with illnesses or conditions that last many years (or even a lifetime).
The survey is COMPLETELY ANONYMOUS AND CONFIDENTIAL.
The results of the survey will be made public on November 10th-11th 2014 at the Health 2.0 conference in London, which attracts about 500 delegates. The 2014 conference is focusing on engaging the entrepreneurs who are behind the development of health apps. All survey participants can have a copy of the results emailed to them, if they wish.
To share your views, please make sure you reply by Friday, 24th October 2014. To take part click on the link: Survey on what patients and carers WANT from health apps
NB There are already some apps on the market which might help people with ME:
- ME/CFS diary aims to help you record symptoms, find a baseline and manage activity.
- FibroMapp The app has 8 different aspects to help people gain control over all aspects of their condition (FM or ME) e.g journal, sleep, how you feel, medication
- Active ME aims to allow you to track and monitor your activity levels to avoid the ‘boom and bust’ cycle [from Esther Crawley and colleagues]
- Relaxation apps include Powernap, Relaxlite, Visulax, Breathe
- Sleep apps can help you track and understand your sleep pattern: Sleepbot, Sleepcyclealarmclock
- Griffith University in Queensland, Australia has developed a new app Clinihelp to track symptoms and feed back to the physician
- Jointly is an app from carers UK to help carers juggle work and care
