{"id":11055,"date":"2016-12-06T08:13:47","date_gmt":"2016-12-06T08:13:47","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=11055"},"modified":"2016-12-06T08:24:51","modified_gmt":"2016-12-06T08:24:51","slug":"%ef%bb%bfepistemic-injustice-in-healthcare-encounters-evidence-from-cfsme","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/%ef%bb%bfepistemic-injustice-in-healthcare-encounters-evidence-from-cfsme\/","title":{"rendered":"\ufeffEpistemic injustice in healthcare encounters: evidence from CFS\/ME"},"content":{"rendered":"

Research abstract:<\/strong><\/h3>\n

Chronic fatigue syndrome or myalgic encephalomyelitis (CFS\/ME) remains a controversial illness category. This paper surveys the state of knowledge and attitudes about this illness and proposes that epistemic<\/a> concerns about the testimonial credibility of patients can be articulated using Miranda Fricker’s concept of epistemic injustice<\/a>.<\/p>\n

While there is consensus within mainstream medical guidelines that there is no known cause of CFS\/ME, there is continued debate about how best to conceive of CFS\/ME, including disagreement about how to interpret clinical studies of treatments. Against this background, robust qualitative and quantitative research from a range of countries has found that many doctors (and medical students) display uncertainty about whether CFS\/ME is real, which may result in delays in diagnosis and treatment for patients. Strikingly, qualitative research evinces that patients with CFS\/ME often experience suspicion by healthcare professionals, and many patients vocally oppose the effectiveness, and the conceptualisation, of their illness as psychologically treatable.<\/p>\n

We address the intersection of these issues and healthcare ethics, and claim that this state of affairs can be explained as a case of epistemic injustice (2007). We find evidence that healthcare consultations are fora<\/a> where patients with CFS\/ME may be particularly vulnerable to epistemic injustice. We argue that the (often unintentional) marginalisation of many patients is a professional failure that may lead to further ethical and practical consequences both for progressive research into CFS\/ME, and for ethical care and delivery of current treatments among individuals suffering from this debilitating illness.<\/p>\n

Epistemic injustice in healthcare encounters: evidence from chronic fatigue syndrome<\/a> by Charlotte Blease, Havi Carel, Keith Geraghty in<\/span> J Med Ethics<\/em> [Published Online\u00a05 December 2016]<\/p>\n

Comment on this article:<\/strong><\/h3>\n

BMJ blogs<\/strong>: Mind the Gap: Ethical Failures in the Treatment of Chronic Fatigue Syndrome. Guest Post: Charlotte Blease & Keith Geraghty, 6 Dec 2016<\/p>\n

Some illnesses are uncool.<\/p>\n

That might sound like an inflammatory comment \u2013 especially for a medical journal, yet perhaps the biggest concealed fact in medicine is that hierarchies of diseases exist among patients and healthcare professionals. A caste system of illness influences how patients perceive their health complaints, whilst health professionals also hold biases that influence how they treat and rank patients in the medical pecking order.<\/p>\n

When it comes to hierarchies of illness, evidence shows that chronic fatigue syndrome (CFS)\/myalgic encephalomyelitis (ME), features at the bottommost end of the medical \u201cfavoured\u201d list.\u00a0\u00a0 read more<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS\/ME) remains a controversial illness category. This paper surveys the state of knowledge and attitudes about this illness and proposes that epistemic concerns about the testimonial credibility of patients can be articulated … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":true,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[3333,3131,2719,3332,3331],"class_list":["post-11055","post","type-post","status-publish","format-standard","hentry","category-news","tag-bmj-blog","tag-charlotte-blease","tag-dr-keith-geraghty","tag-epistemic-injustice","tag-havi-carel"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-2Sj","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11055","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=11055"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11055\/revisions"}],"predecessor-version":[{"id":11058,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11055\/revisions\/11058"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=11055"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=11055"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=11055"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}