{"id":11493,"date":"2017-01-20T07:15:34","date_gmt":"2017-01-20T07:15:34","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=11493"},"modified":"2017-01-20T07:15:34","modified_gmt":"2017-01-20T07:15:34","slug":"life-stories-photo-elicited-diaries-of-people-with-severe-mecfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/life-stories-photo-elicited-diaries-of-people-with-severe-mecfs\/","title":{"rendered":"Life stories & photo-elicited diaries of people with severe ME\/CFS"},"content":{"rendered":"

Thesis abstract:<\/strong><\/h3>\n

Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded\u00a0in medical and social uncertainty. This thesis examines connections\u00a0between language, space and representations of becoming diagnosed and\u00a0living with the often severe effects of this chronic illness.<\/p>\n

Dominant\u00a0medical and political institutions, often successful in funding, hold\u00a0the power to drive the medical debates surrounding aetiology and\u00a0treatment. As these institutions govern and wrangle over the ‘making’ of\u00a0a definable truth, people are living with the ‘reality’ of illness.<\/p>\n

In\u00a0order to address the issues of living with this chronic illness, this\u00a0thesis examines 9 life stories and 8 subsequent Photo-Elicited Diaries\u00a0of 2 males and 7 females diagnosed with ME (also known as Chronic\u00a0Fatigue Syndrome).<\/p>\n

This thesis adopts a transdisciplinary <\/a>approach and\u00a0employs critical discourse and narrative analyses to both the\u00a0bio-political and socio-cultural contexts. A kaleidoscopic view was\u00a0applied to examine the discursive, material and relational aspects of\u00a0living with a particular chronic illness. This method identified issues\u00a0of ‘doing’ illness whilst ‘being’ chronically ill.<\/p>\n

Taking such an\u00a0approach exposed the power relations, social practices and subjective\u00a0experiences of becoming and mastering illness, often within the enclosed\u00a0 spaces of homes\/hospitals and house\/bedbound. The findings reflected on\u00a0the severe effects as a causal agent for displacing personal and social\u00a0truths, for continually plugging in and out of social worlds and the\u00a0conditions of possibilities for resisting and surviving chronic illness.<\/p>\n

By combining narrative and visual accounts the rich complexities of\u00a0living with a severe chronic illness could be better explored. This\u00a0study advocates the benefits of combining spoken and visual experiences\u00a0of illness for future studies and has the potential to impact approaches\u00a0employed within the therapeutic setting.<\/p>\n

As the house\/bedbound tend to\u00a0remain the missing voices within medical and social research, this study\u00a0joins an urgent call for research to focus not merely on disability\u00a0 issues, but impairments and the associated effects – relapsing,\u00a0 recovering and surviving chronic illness.<\/p>\n

ME and its discontents: life stories and photo-elicited diaries of\u00a0a severe chronic illness<\/a>,\u00a0by Sharon Gallagher. MPhil thesis, \u00a0University of East London, June 2016<\/p>\n

UEL website entry<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Thesis abstract: Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded\u00a0in medical and social uncertainty. This thesis examines connections\u00a0between language, space and representations of becoming diagnosed and\u00a0living with the often severe effects of this chronic illness. Dominant\u00a0medical and political institutions, often … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[3463,36,3464],"class_list":["post-11493","post","type-post","status-publish","format-standard","hentry","category-news","tag-photo-elicited-diaries","tag-severe-me","tag-sharon-gallagher"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-2Zn","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11493","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=11493"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11493\/revisions"}],"predecessor-version":[{"id":11516,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11493\/revisions\/11516"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=11493"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=11493"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=11493"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}