{"id":11729,"date":"2017-02-06T07:50:47","date_gmt":"2017-02-06T07:50:47","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=11729"},"modified":"2017-02-06T07:50:47","modified_gmt":"2017-02-06T07:50:47","slug":"important-factors-to-consider-when-treating-children-with-cfsme","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/important-factors-to-consider-when-treating-children-with-cfsme\/","title":{"rendered":"Important factors to consider when treating children with CFS\/ME"},"content":{"rendered":"

Research abstract:<\/strong><\/h3>\n

Background:
\nPaediatric Chronic Fatigue Syndrome (CFS)\/Myalgic Encephalomyelitis (ME)\u00a0is relatively common and disabling. Improving treatment requires the\u00a0development of Patient Reported Outcome Measures (PROMs) that enable\u00a0clinicians and researchers to collect patient-centred evidence on\u00a0outcomes. Health professionals are well placed to provide clinical\u00a0insight into the condition, its treatment and possible outcomes.<\/p>\n

This\u00a0study aimed to understand the perspectives of specialist paediatric\u00a0CFS\/ME health professionals and identify outcomes that are clinically\u00a0important.<\/p>\n

Methods:
\nFocus groups and interviews were held with 15 health professionals\u00a0involved in the care of children with CFS\/ME from the four largest\u00a0specialist paediatric CFS\/ME services in the NHS in England. A range of\u00a0clinical disciplines were included and experience in paediatric CFS\/ME\u00a0ranged from 2 months to 25 years. Ten participants (67%) were female.\u00a0Focus groups and interviews were recorded, transcribed verbatim and data\u00a0were analysed using thematic analysis.<\/p>\n

Results:
\nAll health professionals identified the impact of CFS\/ME across multiple\u00a0aspects of health. Health professionals described four areas used to\u00a0assess the severity of the illness and outcome in children: 1) symptoms;\u00a02) physical function; 3) participation (school, activities and social\u00a0life); and 4) emotional wellbeing.<\/p>\n

They also described the complexity of\u00a0the condition, contextual factors and considerations for treatment to\u00a0help children to cope with the condition.<\/p>\n

Conclusions:
\nClinically important outcomes in paediatric CFS\/ME involve a range of\u00a0aspects of health. Health professionals consider increases in physical\u00a0function yet maintaining school functioning and participation more\u00a0widely as important outcomes from treatment. The results are similar to\u00a0those described by children in a recent study and will be combined to
\ndevelop a new child-specific PROM that has strong clinical utility and\u00a0patient relevance.<\/p>\n

Important factors to consider when treating children with\u00a0 chronic fatigue\u00a0 syndrome\/ myalgic encephalomyelitis (CFS\/ME):\u00a0<\/a>perspectives of health professionals from specialist services, by\u00a0Roxanne M. Parslow, Alison Shaw, Kirstie L. Haywood,\u00a0Esther Crawley in<\/span> BMC Pediatrics<\/em> Vol. 17, #1, page 43, February 1, 2017<\/p>\n","protected":false},"excerpt":{"rendered":"

Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)\/Myalgic Encephalomyelitis (ME)\u00a0is relatively common and disabling. Improving treatment requires the\u00a0development of Patient Reported Outcome Measures (PROMs) that enable\u00a0clinicians and researchers to collect patient-centred evidence on\u00a0outcomes. Health professionals are well placed to provide … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[625,3491,257,416,3450,258,24,25,3451,427],"class_list":["post-11729","post","type-post","status-publish","format-standard","hentry","category-news","tag-adolescents","tag-alison-shaw","tag-children","tag-dr-esther-crawley","tag-kirstie-haywood","tag-paediatric-me","tag-patient-reported-outcome-measures","tag-proms","tag-roxanne-m-parslow","tag-teenagers"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-33b","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11729","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=11729"}],"version-history":[{"count":2,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11729\/revisions"}],"predecessor-version":[{"id":11738,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/11729\/revisions\/11738"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=11729"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=11729"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=11729"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}