{"id":12279,"date":"2017-03-28T07:30:20","date_gmt":"2017-03-28T07:30:20","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=12279"},"modified":"2017-03-28T08:45:03","modified_gmt":"2017-03-28T08:45:03","slug":"how-living-with-cfsme-impacts-upon-peoples-identity","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/how-living-with-cfsme-impacts-upon-peoples-identity\/","title":{"rendered":"How living with CFS\/ME impacts upon people’s identity"},"content":{"rendered":"

Thesis abstract:<\/strong><\/h3>\n

A life lived differently: an exploration of how living with\u00a0chronic fatigue syndrome\/myalgic encephalomyelitis (CFS\/ME)\u00a0impacts upon people’s identity<\/a>, by\u00a0Rebecca E. Murray. University of Huddersfield Doctoral thesis 2017 [Published online\u00a0March 13, 2017]<\/p>\n

Existing literature provides an insight into CFS\/ME, but it is\u00a0fractured, in that it does little to serve understanding, empathy or\u00a0 coping. Moreover the experiences of people with CFS\/ME are under\u00a0theorised.<\/p>\n

The literature demonstrates that issues of identity appear\u00a0central to the lived experience of chronic illness, yet the mechanisms\u00a0underpinning identity are not fully explored.\u00a0 Consequently there is\u00a0 little understanding of the crisis of identity in CFS\/ME. Therefore, the\u00a0aims and objectives of the current research endeavoured to examine\u00a0identity within the context of the lived experience of CFS\/ME.<\/p>\n

Drawing upon Wenger’s (1998) ‘Communities of Practice’ theory (CoP), the\u00a0current research aimed to make transparent the mechanism of identity by\u00a0exploring the lived experience of identity in chronic illness;\u00a0specifically CFS\/ME. It is argued throughout, that a millennia of\u00a0meaning underpins the crisis of identity in CFS\/ME and that CoP, whilst\u00a0predominantly a social theory of learning, was re-conceptualised here to\u00a0illuminate the crisis of identity in chronic illness.<\/p>\n

Data were gathered via a closed Facebook group; cfsid, which was created\u00a0for the purpose of the current research. Participants (n. 37)\u00a0contributed over time and in depth and in so doing revealed the complex\u00a0foundation of their shifting identities. The data was analysed using a\u00a0theoretical thematic analysis (Braun and Clarke, 2006).<\/p>\n

Aligned with CoP, the key findings indicate that the mechanism\u00a0underpinning the crisis of identity in CFS\/ME is the changing nature of\u00a0participation. The history of CFS\/ME is one defined by scepticism and as\u00a0such the controversy surrounding CFS\/ME interacted with the lived\u00a0experience of the illness for participants. The lived experience of\u00a0CFS\/ME for participants was reliably defined by their inability to\u00a0participate in either life or self. Lives and selves were\u00a0unrecognisable, but all was not lost as acceptance and adjustment\u00a0allowed participants to negotiate ways in which they could participate\u00a0despite their CFS\/ME.<\/p>\n

Participants’ experiences of participation emerged\u00a0within the analysis as a journey to finding a new way to be in the\u00a0world. On looking to the future, if people with CFS\/ME are to be better\u00a0supported and enabled within their lived experience of chronic illness,\u00a0the burdening history of CFS\/ME needs to be replaced by legitimacy, and\u00a0the importance of the negotiation of participation in chronic illness\u00a0needs to be illuminated further.<\/p>\n","protected":false},"excerpt":{"rendered":"

Thesis abstract: A life lived differently: an exploration of how living with\u00a0chronic fatigue syndrome\/myalgic encephalomyelitis (CFS\/ME)\u00a0impacts upon people’s identity, by\u00a0Rebecca E. Murray. University of Huddersfield Doctoral thesis 2017 [Published online\u00a0March 13, 2017] Existing literature provides an insight into CFS\/ME, but … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":true,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[3636,2973,3635],"class_list":["post-12279","post","type-post","status-publish","format-standard","hentry","category-news","tag-crisis-of-identity","tag-lived-experience","tag-rebecca-e-murray"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-3c3","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/12279","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=12279"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/12279\/revisions"}],"predecessor-version":[{"id":12400,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/12279\/revisions\/12400"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=12279"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=12279"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=12279"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}