{"id":13926,"date":"2017-08-10T09:59:27","date_gmt":"2017-08-10T09:59:27","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=13926"},"modified":"2017-08-10T09:59:27","modified_gmt":"2017-08-10T09:59:27","slug":"a-plea-from-a-fallen-doctor-on-mecfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/a-plea-from-a-fallen-doctor-on-mecfs\/","title":{"rendered":"A plea from a fallen doctor on ME\/CFS"},"content":{"rendered":"<p><strong>Reddit<\/strong> blog post, 9 Aug 2017: <a href=\"https:\/\/www.reddit.com\/r\/cfs\/comments\/6sneul\/a_plea_from_a_fallen_doctor_on_chronic_fatigue\/\" target=\"_blank\" rel=\"noopener\">A plea from a fallen doctor on Chronic Fatigue Syndrome (ME\/CFS)<\/a><\/p>\n<p>I was educated at Baylor and practiced medicine for 30 years. I had a thriving practice, a rich social life, and excellent physical and mental health. I loved what I did and loved my life. I ran marathons, spoke at conferences, and chaired non-profits.<\/p>\n<p>I am now completely bedridden from post viral CFS.<\/p>\n<p>I am writing this to beg my fellow colleagues to take this disease seriously, understand that it is 100% organic in origin, and that it can happen to anyone.<\/p>\n<p>I used to see CFS patients fairly often in my practice. Some of them were quite debilitated and some semi-functional. I always tried to be sympathetic and did what I could to help, but truth be told there was always a voice in my head questioning if their symptoms were psychosomatic. At times I delayed a diagnosis because the literature told me to wait 6 months. I recommended exercise, antidepressants, and psychotherapy because that had always been the conventional wisdom.<\/p>\n<p>And when patients didn&#8217;t come back, I subconsciously assumed they had gotten better, and that I was justified in my approach. I feel tremendous guilt about this now.<\/p>\n<p>When I got the flu that started this, I thought I would be out of work for 10 days. 10 days turned into 10 weeks, and then 10 months. The virus was gone, my labs were clean, and yet I still felt horribly ill.<\/p>\n<p>My symptoms:<\/p>\n<ul>\n<li>I could barely stand up in the shower due to orthostatic intolerance.<br \/>\nLater my wife would have to install a shower chair<\/li>\n<li>I could not read or write due to cognitive dysfunction<\/li>\n<li>I could not walk more than 45 steps without extreme lactic build up in my muscles<\/li>\n<li>Any minor extortion would produce an intensifying of symptoms for several days<\/li>\n<li>Add on insomnia, sensitivity to noise and light, and uncharacteristic emotional lability and you understand the hell my life became<\/li>\n<\/ul>\n<p>Every type of conventional medical test came back negative or could not explain symptoms. My own family thought I was crazy (not to mention my friends, cohort, and colleagues).<\/p>\n<p>Of course I tried the standard things I told my patients to do.<br \/>\nAntidepressants were hit or miss as they so often are and did not touch the core symptoms. Psychotherapy was helpful for coping.<br \/>\nExercise of any kind was a complete unmitigated disaster that severely and permanently worsened my state.<\/p>\n<p>Finally I did find lab abnormalities. Cytokines. Krebs cycle metabolites. Near zero ADH. As I lay bed-bound I slowly regained the ability to process complex data, and I poured through the research and discovered that yes this is a very real illness with organic abnormalities documented as early as 1932. Why aren&#8217;t we taught this in medical school?<\/p>\n<p>I tried antivirals, antibiotics, hormone replacement, and yes I&#8217;ll admit, even some more questionable alternative medicine protocols.<br \/>\nNothing worked.<\/p>\n<p>Finally I went into remission using a combination of monoclonal antibodies (Rituxan, Cosyntex, Enbrel). Remission was glorious. I took my wife to Costa Rica, played with my grandchildren, and learned how to sail. And then I relapsed for no good reason and hell returned. As of yet I have been unable to reproduce the first remission.<\/p>\n<p>I beg other doctors to take this to heart. CFS is a real disease, as bad as end stage AIDS or cancer. It is also treatable, but only through trial and error, and even then nothing is guaranteed.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Reddit blog post, 9 Aug 2017: A plea from a fallen doctor on Chronic Fatigue Syndrome (ME\/CFS) I was educated at Baylor and practiced medicine for 30 years. I had a thriving practice, a rich social life, and excellent physical &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/a-plea-from-a-fallen-doctor-on-mecfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[2679],"class_list":["post-13926","post","type-post","status-publish","format-standard","hentry","category-news","tag-doctors"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-3CC","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/13926","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=13926"}],"version-history":[{"count":2,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/13926\/revisions"}],"predecessor-version":[{"id":13952,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/13926\/revisions\/13952"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=13926"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=13926"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=13926"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}