{"id":14284,"date":"2017-09-07T08:30:27","date_gmt":"2017-09-07T08:30:27","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=14284"},"modified":"2017-09-07T12:30:36","modified_gmt":"2017-09-07T12:30:36","slug":"can-you-help-design-a-patient-reported-experience-measure-prem-for-neurological-conditions","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/can-you-help-design-a-patient-reported-experience-measure-prem-for-neurological-conditions\/","title":{"rendered":"Can you help design a Patient Reported Experience Measure (PREM) for neurological conditions?"},"content":{"rendered":"<p>If you have, or are affected by, a neurological condition, the <a href=\"http:\/\/www.walesneurologicalalliance.org.uk\/\" target=\"_blank\" rel=\"noopener\">Wales Neurological Alliance\u00a0<\/a>wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey.<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"aligncenter wp-image-14285 size-full lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/09\/wna.jpg?resize=526%2C115\" alt=\"\" width=\"526\" height=\"115\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/09\/wna.jpg?w=526&amp;ssl=1 526w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/09\/wna.jpg?resize=150%2C33&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/09\/wna.jpg?resize=300%2C66&amp;ssl=1 300w\" data-sizes=\"(max-width: 526px) 100vw, 526px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 526px; --smush-placeholder-aspect-ratio: 526\/115;\" \/><\/p>\n<p>With your valuable input, together we aim to have a Patient Reported Experience Measure (PREM) that can be administered, collected and collated on a national level that will be able to identify inequalities in neurological health care provision across Wales, support evaluation of services and demonstrate change over time.<\/p>\n<p>Through this initial online questionnaire, you will have the opportunity to engage in shaping the final PREM survey by sharing your thoughts on the following key areas:<\/p>\n<ul>\n<li>Navigation (making the survey flow easily between sections)<\/li>\n<li>What is a realistic number of questions<\/li>\n<li>Accessibility \u2013 Online, paper-format or both<\/li>\n<li>Inclusivity \u2013 Language(s) &amp; other formats<\/li>\n<li>How can we best engage with people with, and affected by, neurological conditions to complete the survey<\/li>\n<\/ul>\n<p>Responses will remain anonymous and ultimately feed into developing a neurological survey with the service user at its very heart.<\/p>\n<p><a href=\"https:\/\/www.surveymonkey.co.uk\/r\/NEUROVOICEWNA\" target=\"_blank\" rel=\"noopener\">Take the survey\u00a0in\u00a0English<\/a>\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<a href=\"https:\/\/www.surveymonkey.co.uk\/r\/LLAISNIWROWNA\" target=\"_blank\" rel=\"noopener\">Cymraeg<\/a><\/p>\n<p><strong>This initial survey will close on 30th October 2017.<\/strong><\/p>\n<p>We are extremely grateful for your support and thank you for taking the time to respond to this survey. We look forward to sharing the final neurological PREM survey with you in the near future.<\/p>\n<p>Should you wish to further share your views and recommendations we would be delighted to conduct a telephone interview with you. Please contact: Darren Wyn Jones<\/p>\n<p>07557554272\u00a0\u00a0\u00a0\u00a0\u00a0<a href=\"mailto:darren.wynjones@mssociety.org.uk\" target=\"_blank\" rel=\"noopener\">mailto:darren.wynjones@mssociety.org.uk<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>If you have, or are affected by, a neurological condition, the Wales Neurological Alliance\u00a0wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey. With &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/can-you-help-design-a-patient-reported-experience-measure-prem-for-neurological-conditions\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[2441,2440,161,2439],"class_list":["post-14284","post","type-post","status-publish","format-standard","hentry","category-news","tag-patient-reported-experience-measures","tag-prems","tag-survey","tag-wales-neurological-alliance"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-3Io","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/14284","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=14284"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/14284\/revisions"}],"predecessor-version":[{"id":14293,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/14284\/revisions\/14293"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=14284"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=14284"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=14284"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}