{"id":14477,"date":"2017-09-25T07:58:49","date_gmt":"2017-09-25T07:58:49","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=14477"},"modified":"2017-09-25T08:01:37","modified_gmt":"2017-09-25T08:01:37","slug":"omf-resources-for-parents-of-children-with-mecfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/omf-resources-for-parents-of-children-with-mecfs\/","title":{"rendered":"OMF resources for parents of children with ME\/CFS"},"content":{"rendered":"<h3><strong>The Open Medicine Foundation<\/strong> Pediatric ME\/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK:<\/h3>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-full wp-image-14478 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2017\/09\/OMF-logo-transparent-no-circles-124x88.jpg?resize=124%2C88\" alt=\"\" width=\"124\" height=\"88\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 124px; --smush-placeholder-aspect-ratio: 124\/88;\" \/><\/p>\n<p>The presentation and course of Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS) is often different in children and adolescence than adults. Dr. David S. Bell, a member of our ME\/CFS Scientific Advisory Board and pioneer in the field of Pediatric ME\/CFS, provided us an <em>in-depth description of pediatric ME\/CFS<\/em>.<\/p>\n<p>A <em>ME\/CFS Pediatric Primer<\/em> (Frontiers in Pediatrics, 2017) provides a medical understanding for pediatricians, family practice doctors, and all healthcare providers involved in children\/student\u2019s care. We encourage parents to share this link with your child\u2019s physician and healthcare team.<\/p>\n<p>The impact of ME\/CFS on a young person can be very significant. To help young people and their families cope with educational, social, and developmental challenges, in addition to medical problems, we present three outstanding resources developed by Dr. Faith Newton of Delaware State University. We encourage parents to print these documents and share them with your child\u2019s school administration.<\/p>\n<p>ME\/CFS Fact Sheet: <em>Educational Implications<\/em><br \/>\nME\/CFS Fact Sheet: <em>Classroom Accommodations<\/em><br \/>\nME\/CFS School Fact Sheet:\u00a0<em>Resource\u00a0for\u00a0Parents,\u00a0Educators\u00a0&amp;\u00a0School\u00a0Nurses<\/em><\/p>\n<p><a href=\"https:\/\/www.omf.ngo\/mecfs-and-pediatrics\/\" target=\"_blank\" rel=\"noopener\">Go to the website to download the fact sheets<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Open Medicine Foundation Pediatric ME\/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS) is often &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/omf-resources-for-parents-of-children-with-mecfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[625,257,2510,4022,1299,2205,258],"class_list":["post-14477","post","type-post","status-publish","format-standard","hentry","category-news","tag-adolescents","tag-children","tag-dr-david-s-bell","tag-dr-faith-newton","tag-omf","tag-open-medicine-foundation","tag-paediatric-me"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-3Lv","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/14477","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=14477"}],"version-history":[{"count":2,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/14477\/revisions"}],"predecessor-version":[{"id":14480,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/14477\/revisions\/14480"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=14477"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=14477"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=14477"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}