{"id":15580,"date":"2018-02-16T07:17:49","date_gmt":"2018-02-16T07:17:49","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=15580"},"modified":"2018-02-16T07:17:49","modified_gmt":"2018-02-16T07:17:49","slug":"post-exertional-malaise-get-in-me-cfs-a-guide-to-the-research","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/post-exertional-malaise-get-in-me-cfs-a-guide-to-the-research\/","title":{"rendered":"Post-Exertional Malaise & GET in ME\/CFS – a guide to the research"},"content":{"rendered":"

ME Action<\/strong> blog post, 9 Feb 2018:\u00a0Post-Exertional Malaise & GET in ME\/CFS \u2013 a guide to the research<\/a><\/h3>\n

\u201cPost-Exertional Malaise & Graded Exercise Therapy in ME\/CFS\u201d Primer,<\/strong>
\n December 2017<\/strong><\/h3>\n

\"\"A member of #MEAction Network Australia has written a primer,\u00a0outlining the flaws in the graded exercise therapy (GET) research and\u00a0explaining why GET is likely to be harmful for people with ME\/CFS.<\/p>\n

The primer has been endorsed by Emerge Australia Inc and infectious\u00a0disease specialist, Dr John Whiting. It was submitted to the\u00a0Australian Senate during the most recent Senate Estimates, in October\u00a02017, has been sent to the President of the Royal Australian College
\nof General Practitioners, as well as several Australian politicians,\u00a0and has been used by patient advocates in meetings with politicians in\u00a0Australia and Ireland.<\/p>\n

Now it is being made available for patients to download and give to\u00a0their health professionals, or attach to their applications for\u00a0disability support.<\/p>\n

Key points in the primer:<\/strong><\/p>\n

    \n
  1. PEM, not fatigue, is the cardinal feature of ME\/CFS.<\/li>\n
  2. GET research uses broad diagnostic criteria that doesn\u2019t require\u00a0PEM for diagnosis and, instead, focuses on fatigue. In order to be\u00a0studying ME\/CFS, study participants must experience PEM, but there is\u00a0no way of knowing how many (if any) participants in GET studies do.<\/li>\n
  3. GET research primarily uses subjective outcome measures, which are\u00a0subject to bias. When objective outcome measures are used, evidence\u00a0does not support the use of GET for ME\/CFS.<\/li>\n
  4. GET research has been criticised for inadequate reporting of harm. Patient surveys indicate that many patients experience harm from GET\u00a0treatment.<\/li>\n
  5. Despite the flawed nature of GET research, patients are routinely\u00a0rejected from support services because ME\/CFS is seen to be both\u00a0temporary and treatable with GET, despite ME\/CFS having a low recovery\u00a0rate.<\/li>\n<\/ol>\n

    The document also includes a two page summary at the beginning, for\u00a0those who are unable to read the entire document.<\/p>\n

    This primer is available on Emerge Australia\u2019s website<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

    ME Action blog post, 9 Feb 2018:\u00a0Post-Exertional Malaise & GET in ME\/CFS \u2013 a guide to the research \u201cPost-Exertional Malaise & Graded Exercise Therapy in ME\/CFS\u201d Primer, December 2017 A member of #MEAction Network Australia has written a primer,\u00a0outlining the … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4211,10,481,584,585],"class_list":["post-15580","post","type-post","status-publish","format-standard","hentry","category-news","tag-emerge-australia","tag-get","tag-graded-exercise-therapy","tag-pem","tag-post-exertional-malaise"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-43i","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/15580","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=15580"}],"version-history":[{"count":2,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/15580\/revisions"}],"predecessor-version":[{"id":15597,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/15580\/revisions\/15597"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=15580"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=15580"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=15580"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}