{"id":16254,"date":"2018-04-26T06:57:13","date_gmt":"2018-04-26T06:57:13","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=16254"},"modified":"2018-08-08T07:35:03","modified_gmt":"2018-08-08T07:35:03","slug":"its-like-being-a-slave-to-your-own-body-in-a-way-a-qualitative-study-of-adolescents-with-cfs-me","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/its-like-being-a-slave-to-your-own-body-in-a-way-a-qualitative-study-of-adolescents-with-cfs-me\/","title":{"rendered":"&#8216;It&#8217;s like being a slave to your own body in a way&#8217;: a qualitative study of adolescents with CFS\/ME"},"content":{"rendered":"<h3><strong>Research abstract:<\/strong><\/h3>\n<p>&#8216;<a href=\"https:\/\/www.researchgate.net\/publication\/324160285_%27It%27s_like_being_a_slave_to_your_own_body_in_a_way%27_a_qualitative_study_of_adolescents_with_chronic_fatigue_syndrome\" target=\"_blank\" rel=\"noopener\">It&#8217;s like being a slave to your own body in a way&#8217;: a qualitative study of adolescents with chronic fatigue syndrome<\/a>, by Berit Wider\u00f8e Nj\u00f8lstad, Anne Marit Mengshoel &amp; Unni Sveen <span style=\"text-decoration: underline;\">in<\/span> <em>Scand J Occup Ther.<\/em>\u00a02018 Apr 1:1-10.<\/p>\n<p>BACKGROUND:<br \/>\nChronic fatigue syndrome\/myalgic encephalomyelitis (CFS\/ME) is a relatively common disabling illness in adolescents that may limit participation in daily life.<\/p>\n<p>AIM:<br \/>\nThis study explored interactions between the illness experiences of adolescents with CFS\/ME, their occupational lives and expectations for the future.<\/p>\n<p>METHODS:<br \/>\nSeven adolescents with CFS\/ME were interviewed. The interviews were analyzed using thematic analysis.<\/p>\n<p>RESULTS:<br \/>\nThree themes were developed. <em>&#8216;Being ruled by an unfamiliar and inexplicable body&#8217;<\/em>, which illustrated that altered and strange bodies seemed to separate and disrupt the participants from their former occupational lives. <em>&#8216;On the sideline of life with peers&#8217;<\/em>, which demonstrated that the informants spent time at home, doing undemanding activities instead of participating in activities with peers. &#8216;A <em>coherent connection between present and future life&#8217;<\/em>, which was reflected by how the participants eventually accepted their situation and rebuilt a meaningful occupational life and value of self.<\/p>\n<p>CONCLUSION:<br \/>\nCFS\/ME made the body unfamiliar and disconnected informants from participating in their usual daily occupations. A coherent interaction between body, occupational life and social self was achieved by taking their new body into account and adjusting their occupations accordingly. This practice enabled the participants to hope for a better future life.<\/p>\n<p><a href=\"http:\/\/sci-hub.hk\/10.1080\/11038128.2018.1455895\" target=\"_blank\" rel=\"noopener\">Read the full article<\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Research abstract: &#8216;It&#8217;s like being a slave to your own body in a way&#8217;: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Wider\u00f8e Nj\u00f8lstad, Anne Marit Mengshoel &amp; Unni Sveen in Scand J Occup Ther.\u00a02018 Apr 1:1-10. &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/its-like-being-a-slave-to-your-own-body-in-a-way-a-qualitative-study-of-adolescents-with-cfs-me\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[625,4370,4372,2128,1873,427,4371,212],"class_list":["post-16254","post","type-post","status-publish","format-standard","hentry","category-news","tag-adolescents","tag-anne-marit-mengshoel","tag-berit-wideroe-njolstad","tag-illness-experience","tag-norcapital-project","tag-teenagers","tag-unni-sveen","tag-young-people"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-4ea","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/16254","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=16254"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/16254\/revisions"}],"predecessor-version":[{"id":17629,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/16254\/revisions\/17629"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=16254"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=16254"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=16254"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}