{"id":17509,"date":"2018-07-23T13:41:55","date_gmt":"2018-07-23T13:41:55","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=17509"},"modified":"2018-07-23T13:41:55","modified_gmt":"2018-07-23T13:41:55","slug":"checking-our-blind-spots-current-status-of-research-evidence-summaries-in-me-cfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/checking-our-blind-spots-current-status-of-research-evidence-summaries-in-me-cfs\/","title":{"rendered":"Checking our blind spots: current status of research evidence summaries in ME\/CFS"},"content":{"rendered":"<h3><a href=\"https:\/\/bjsm.bmj.com\/content\/early\/2018\/07\/17\/bjsports-2018-099553\">Checking our blind spots: current status of research evidence summaries in ME\/CFS<\/a>, by Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell <u>in<\/u> <em>British Journal of Sports Medicine,<\/em> July 2018<\/h3>\n<p><strong>Editorial:<\/strong><\/p>\n<p>The <a href=\"http:\/\/guides.mclibrary.duke.edu\/c.php?g=158201&amp;p=1036021\">evidence-based practice (EBP) model<\/a> hierarchically organises scientific information by level, from lowly case studies to lofty systematic reviews and clinical trials. Clinical trials best influence recommendations because they putatively have the greatest <a href=\"http:\/\/www.indiana.edu\/~p1013447\/dictionary\/int_val.htm\">internal<\/a><br \/>\nvalidity.1<\/p>\n<p>This assumption is based on sound research ethics, such as\u00a0<a href=\"https:\/\/www.youthpass.eu\/da\/youthpass\/documentation\/action-2\/key-competence-mathematical-and-science\/\">scientific competence<\/a> and good faith actors, as well as observed differences in outcomes. An EBP blind spot emerges when fundamental assumptions are unmet.<\/p>\n<p>Based on findings of a 2018 PEDro evidence summary in BJSM 2 and elsewhere,3 it now seems clear that scientific research in myalgic encephalomyelitis\/chronic fatigue\u00a0syndrome (ME\/CFS) resides in a blind spot.<\/p>\n<p style=\"padding-left: 30px;\"><em>The paper goes on to discuss the flawed results of the PACE trial into GET and CBT before concluding:<\/em><\/p>\n<p>EBP also includes patient perspectives. We should follow the example of engaged patient advocates and citizen scientists in ME\/CFS by involving patients as advisory board members on trials and as reviewers on published evidence summaries. Community- based participatory research designs should be elevated to ensure information flows from bedside-to-lab bench, in addition to lab bench-to-bedside. By including evidence from patients in clinical decisions and research, we can begin to address the important blind spots in how we think about and implement EBP.<\/p>\n<p><a href=\"https:\/\/sci-hub.tw\/https:\/bjsm.bmj.com\/content\/early\/2018\/07\/17\/bjsports-2018-099553\">Read full article<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Checking our blind spots: current status of research evidence summaries in ME\/CFS, by Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell in British Journal of Sports Medicine, July 2018 Editorial: The evidence-based practice (EBP) &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/checking-our-blind-spots-current-status-of-research-evidence-summaries-in-me-cfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[1834,11,4539,10,4538,310,654,2074,3896],"class_list":["post-17509","post","type-post","status-publish","format-standard","hentry","category-news","tag-biomedical-research","tag-cbt","tag-christopher-r-snell","tag-get","tag-jared-steven","tag-pace-trial","tag-prof-mark-vanness","tag-staci-r-stevens","tag-todd-e-davenport"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-4yp","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/17509","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=17509"}],"version-history":[{"count":2,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/17509\/revisions"}],"predecessor-version":[{"id":17527,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/17509\/revisions\/17527"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=17509"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=17509"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=17509"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}