{"id":17634,"date":"2018-08-08T11:00:52","date_gmt":"2018-08-08T11:00:52","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=17634"},"modified":"2018-08-08T11:00:52","modified_gmt":"2018-08-08T11:00:52","slug":"august-8th-2018-understanding-remembrance-day-for-severe-me","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/august-8th-2018-understanding-remembrance-day-for-severe-me\/","title":{"rendered":"August 8th 2018: Understanding & Remembrance Day for Severe ME"},"content":{"rendered":"

August 8th, 2018: Understanding and Remembrance Day for Severe ME<\/a>,<\/strong> by Jody Smith in<\/span> Phoenix Rising blog<\/em>, 4 Aug 2018<\/h3>\n

\"\"
\nCan you read these words I\u2019ve written on this page? Good. Then you know that I am NOT an example of the extremely ill with ME\/CFS. Because if I were, you wouldn\u2019t see or hear me. I\u2019d be behind a closed door in my bed, trying to block out any sound or light.<\/p>\n

Even if you were in the same house with such a person you might not see or hear them. They are likely busy focusing on breathing in and out. You\u2019d be surprised how much work that can be when you\u2019re this ill. They are trying to live through the next second, minute, hour \u2026 day \u2026 year \u2026 It takes everything they\u2019ve got.<\/p>\n

I have never been this sick, more fortunate for me. But don\u2019t kid yourself. There are so many of these invalids holding on to the shreds and threads of survival. In fact, 25% of those with ME\/CFS suffer from its most severe forms. Some are able to depend on a caregiver. Many more are on their own, toughing it out.<\/p>\n

Read full article<\/a><\/p>\n

More information and resources for severe ME:<\/strong><\/p>\n

Stonebird<\/a><\/p>\n

25% ME group<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I\u2019ve written on this page? Good. Then you know that I am NOT an example … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[1993,36,1083,549],"class_list":["post-17634","post","type-post","status-publish","format-standard","hentry","category-news","tag-25-me-group","tag-severe-me","tag-severe-me-day","tag-stonebird"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-4Aq","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/17634","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=17634"}],"version-history":[{"count":1,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/17634\/revisions"}],"predecessor-version":[{"id":17636,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/17634\/revisions\/17636"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=17634"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=17634"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=17634"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}