{"id":18314,"date":"2018-10-18T07:02:03","date_gmt":"2018-10-18T07:02:03","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=18314"},"modified":"2018-10-18T07:03:05","modified_gmt":"2018-10-18T07:03:05","slug":"final-me-cfs-nice-guideline-scope-published-oct-2018","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/final-me-cfs-nice-guideline-scope-published-oct-2018\/","title":{"rendered":"Final ME\/CFS NICE guideline scope published, Oct 2018"},"content":{"rendered":"<h3><strong>Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)\/chronic fatigue syndrome: diagnosis and management (Oct 2020)<\/strong><\/h3>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-full wp-image-16670 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/05\/NICE-small.jpg?resize=298%2C189\" alt=\"\" width=\"298\" height=\"189\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/05\/NICE-small.jpg?w=298&amp;ssl=1 298w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/05\/NICE-small.jpg?resize=150%2C95&amp;ssl=1 150w\" data-sizes=\"(max-width: 298px) 100vw, 298px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 298px; --smush-placeholder-aspect-ratio: 298\/189;\" \/>The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that were received during consultation and our responses to these comments: <a href=\"https:\/\/www.nice.org.uk\/guidance\/indevelopment\/gid-ng10091\/documents\" target=\"_blank\" rel=\"noopener\">documents<\/a><\/p>\n<p>We would like to thank you for your continued involvement and interest in this guideline. The comments received during the consultation period helped us to develop and refine the scope.<\/p>\n<p>Your organisation [WAMES] has been identified as a key stakeholder for this topic; we will contact you again when the draft guideline is released for consultation and ask that you please prioritise sending us your comments.<\/p>\n<h3><strong>Provisional Schedule<\/strong><\/h3>\n<p>Draft guidance consultation\u00a0 \u00a0\u00a021 April 2020 &#8211; 02 June 2020<br \/>\nExpected publication\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 14 October 2020<\/p>\n<h3><\/h3>\n<h3><strong>Committee members <\/strong>[more appointments to come]<\/h3>\n<p><strong>Chair<\/strong><\/p>\n<ul>\n<li><strong>Peter Barry<\/strong> Consultant\u00a0Paediatric\u00a0Intensivist,\u00a0University\u00a0Hospitals of\u00a0Leicester<\/li>\n<\/ul>\n<p><strong>Vice Chair<\/strong><\/p>\n<ul>\n<li><strong>Ilora Finlay<\/strong> Consultant in\u00a0Palliative\u00a0Medicine, Clinical\u00a0Lead for\u00a0Palliative Care\u00a0for Wales,Velindre NHS\u00a0Trust, Cardiff<\/li>\n<\/ul>\n<p><strong>Core members \/ Members<\/strong><\/p>\n<ul>\n<li>Secondary care\u00a0paediatrician:\u00a0<strong>Theo Anbu<\/strong> (Alder\u00a0Hey, Liverpool)<\/li>\n<li>Physician with an\u00a0interest in\u00a0ME\/CFS:\u00a0 \u00a0<strong>Mike Beadsworth<\/strong> (Consultant<br \/>\nInfectious Diseases, Liverpool)<\/li>\n<li>Physiotherapist:\u00a0 \u00a0<strong>Joanne Bond-Kendall,\u00a0<\/strong>Bath (MAGENTA &amp; FITNET researcher)<\/li>\n<li>Social worker:\u00a0 \u00a0<strong>Tony Crouch<\/strong> (Social work\u00a0advisor &#8211; works with 25% Group &amp; TYMES Trust)<\/li>\n<li>Psychologist:\u00a0 \u00a0 <strong>Jo Daniels,\u00a0<\/strong>Bath\u00a0 \u00a0(Interests: CBT, anxiety disorders)<\/li>\n<li>GP:\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0<strong>Luis Nacul <\/strong>(leads the\u00a0CureMEteam and the UK ME\/CFS Biobank)<\/li>\n<li>Occupational\u00a0therapist:\u00a0<strong>Susan Watson<\/strong>, (Leeds\u00a0&amp; West Yorkshire\u00a0CFS\/ME Service)<\/li>\n<li>Community\u00a0paediatrician:<\/li>\n<li>Dietician:<\/li>\n<li>Epidemiologist:<\/li>\n<li>Nurse with\u00a0specialist interest\u00a0in ME\/CFS:<\/li>\n<li>Community\u00a0children\u2019s nurse:<\/li>\n<li>Lay member:\u00a0 <strong>Saran Bonser<\/strong><\/li>\n<li>Lay member:\u00a0 <strong>Sally Burch <\/strong>(http:\/\/sallyjustme.blogspot.com)<\/li>\n<li>Lay member:\u00a0 <strong>Nicola Kidby<\/strong><\/li>\n<li>Lay member:\u00a0 <strong>Adam Lowe\u00a0 <\/strong>(#MEAction)<\/li>\n<li>Lay member:\u00a0\u00a0<strong>Dorinda Jack<\/strong><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)\/chronic fatigue syndrome: diagnosis and management (Oct 2020) The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/final-me-cfs-nice-guideline-scope-published-oct-2018\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4427],"class_list":["post-18314","post","type-post","status-publish","format-standard","hentry","category-news","tag-nice-guideline-me-cfs"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-4Lo","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/18314","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=18314"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/18314\/revisions"}],"predecessor-version":[{"id":18328,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/18314\/revisions\/18328"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=18314"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=18314"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=18314"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}