{"id":18862,"date":"2018-12-13T09:28:12","date_gmt":"2018-12-13T09:28:12","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=18862"},"modified":"2018-12-13T09:28:18","modified_gmt":"2018-12-13T09:28:18","slug":"adolescents-descriptions-of-fatigue-fluctuation-and-payback-in-cfs-me","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/adolescents-descriptions-of-fatigue-fluctuation-and-payback-in-cfs-me\/","title":{"rendered":"Adolescent&#8217;s descriptions of fatigue, fluctuation and payback in CFS\/ME"},"content":{"rendered":"<h3><a href=\"http:\/\/wames.org.uk\/cms-english\/2018\/11\/associations-between-clinical-symptoms-plasma-norepinephrine-deregulated-immune-gene-networks-in-subgroups-of-adolescents-with-cfs\/teen-lying\/\" rel=\"attachment wp-att-18652\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"aligncenter wp-image-18652 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/11\/teen-lying-300x169.jpg?resize=300%2C169\" alt=\"\" width=\"300\" height=\"169\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/11\/teen-lying.jpg?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/11\/teen-lying.jpg?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/11\/teen-lying.jpg?resize=768%2C433&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/11\/teen-lying.jpg?resize=1024%2C577&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/11\/teen-lying.jpg?w=1280&amp;ssl=1 1280w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/169;\" \/><\/a>Adolescent&#8217;s descriptions of fatigue, fluctuation and payback in\u00a0chronic fatigue syndrome\/myalgic encephalopathy (CFS\/ME):\u00a0Interviews with\u00a0 adolescents and parents, by\u00a0Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison\u00a0Shaw, Kirstie L Haywood, Esther Crawley <span style=\"text-decoration: underline;\">in<\/span>\u00a0<em>BMJ Paediatrics Open<\/em>\u00a0Vol 2, #1,\u00a0December 4, 2018<\/h3>\n<h3><strong>What this study hopes to add?<\/strong><\/h3>\n<ul>\n<li>All adolescents describe unique aspects of fatigue\u00a0in CFS\/ME; how it fluctuates naturally day to day but\u00a0can also get worse following activity (payback).<\/li>\n<li>The individual experience of fatigue varies in severity,\u00a0frequency, the amount of activity taken to cause\u00a0payback as well as the resulting impact on function.<\/li>\n<li>The variation in the experience of fatigue needs to\u00a0be taken into account in treatment.<\/li>\n<\/ul>\n<h3><strong>Research abstract:<\/strong><\/h3>\n<p>Objective:<br \/>\nAs part of a larger qualitative study to explore outcomes important in\u00a0paediatric chronic fatigue syndrome\/myalgic encephalopathy (CFS\/ME) and\u00a0what improvements in fatigue and disability are key, interviews were\u00a0undertaken with adolescents and their parents. This paper focuses on\u00a0their descriptions of fatigue, fluctuation of symptoms and payback.<\/p>\n<p>Design and setting:<br \/>\nSemistructured qualitative interviews were undertaken between December\u00a02014 and February 2015. Adolescents and parents were interviewed\u00a0separately. Participants were recruited from a single specialist\u00a0paediatric chronic fatigue service. Interviews were audio recorded,\u00a0transcribed verbatim and analysed using thematic analysis.<\/p>\n<p>Participants:<br \/>\nWe interviewed 21 adolescents and their parents (20 mothers and 2\u00a0fathers). The adolescents were aged between 12 and 17 years of age (mean\u00a0age 14.4 years), mild to moderately affected by CFS\/ME (not housebound)\u00a0and the majority were female (16\/21).<\/p>\n<p>Results<br \/>\nAll adolescents with CFS\/ME reported fatigue, a natural fluctuation of\u00a0the condition, with good days and bad days as well as an increase in\u00a0symptoms after activity (payback). However, adolescent&#8217;s descriptions of\u00a0fatigue, symptoms and the associated impact on their daily lives\u00a0differed. The variations included: fatigue versus a collection of\u00a0symptoms, constant versus variable symptoms and variable symptom\u00a0severity. There were differences between participants in the amount of\u00a0activity taken to cause payback. The impact of fatigue and symptoms on\u00a0function ranged from: limiting the duration and amount of leisure\u00a0activities, struggling with daily activities (eg, self-care) to no\u00a0activity (sedentary).<\/p>\n<p>Conclusions<br \/>\nFatigue, fluctuation of the condition and payback after activity are\u00a0described by all adolescents with CFS\/ME in this study. However, the\u00a0individual experience in terms of how they describe it and the degree\u00a0and impact varies.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Adolescent&#8217;s descriptions of fatigue, fluctuation and payback in\u00a0chronic fatigue syndrome\/myalgic encephalopathy (CFS\/ME):\u00a0Interviews with\u00a0 adolescents and parents, by\u00a0Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison\u00a0Shaw, Kirstie L Haywood, Esther Crawley in\u00a0BMJ Paediatrics Open\u00a0Vol 2, #1,\u00a0December 4, 2018 What this study hopes &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/adolescents-descriptions-of-fatigue-fluctuation-and-payback-in-cfs-me\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[625,3491,257,4766,416,3450,4765,258,4764,2936,4610,427],"class_list":["post-18862","post","type-post","status-publish","format-standard","hentry","category-news","tag-adolescents","tag-alison-shaw","tag-children","tag-danielle-byrne","tag-dr-esther-crawley","tag-kirstie-haywood","tag-nina-anderson","tag-paediatric-me","tag-payback","tag-relapse","tag-roxanne-morin-parslow","tag-teenagers"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-4Ue","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/18862","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=18862"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/18862\/revisions"}],"predecessor-version":[{"id":18975,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/18862\/revisions\/18975"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=18862"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=18862"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=18862"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}