{"id":19571,"date":"2019-03-04T14:50:55","date_gmt":"2019-03-04T14:50:55","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=19571"},"modified":"2019-03-04T14:50:56","modified_gmt":"2019-03-04T14:50:56","slug":"impact-of-me-cfs-on-patients-their-family-volunteers-needed","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/impact-of-me-cfs-on-patients-their-family-volunteers-needed\/","title":{"rendered":"Impact of ME\/CFS on patients &#038; their family &#8211; volunteers needed"},"content":{"rendered":"<h2 style=\"text-align: center;\"><span style=\"color: #339966;\"><strong><span style=\"color: #0b8f4d;\">Impact of ME\/CFS on patients &amp; their family<\/span>:<\/strong><\/span><\/h2>\n<h3 style=\"text-align: center;\">\u00a0a clinical research study\u00a0by a third-year medical student at Cardiff University<\/h3>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #0b8f4d;\"><strong>Aim of the project<\/strong>:<\/span><\/h3>\n<p>The aim of this project is to gain a better insight into the many ways in which ME\/CFS can manifest itself in patients with ME\/CFS and to explore the impact this has on the patients and their family members.<\/p>\n<p>To help with this, two short\u00a0\u2018quality of life\u2019 questionnaires will be sent to everyone who wishes to participate in this research.<\/p>\n<ul>\n<li><a href=\"http:\/\/wames.org.uk\/cms-english\/2019\/03\/impact-of-me-cfs-on-patients-their-family-volunteers-needed\/surveys-300x300\/\" rel=\"attachment wp-att-19572\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-full wp-image-19572 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/02\/surveys-300x300.jpg?resize=300%2C300\" alt=\"\" width=\"300\" height=\"300\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/02\/surveys-300x300.jpg?resize=300%2C300&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/02\/surveys-300x300.jpg?resize=150%2C150&amp;ssl=1 150w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/300;\" \/><\/a>All participants must be\u00a0at least 18 years of age.<\/li>\n<li>Participants should have a diagnosis of ME\/CFS made by a doctor or practicing healthcare professional.<\/li>\n<li>Please try to assess whether you are likely to be well enough to take part at the specified time, but participation is voluntary and you can withdraw at any time if necessary.<\/li>\n<li>All family members do not need to live at the same address.<\/li>\n<\/ul>\n<p>The student is looking for a maximum of 40 families to take part, each with up to 4 family members.<\/p>\n<p style=\"text-align: center;\"><strong>Questionnaires will be sent out the week commencing 11th March 2019<\/strong><\/p>\n<h3><\/h3>\n<h3><span style=\"color: #0b8f4d;\"><strong>Do you want to take part, or do you have\u00a0questions?<\/strong><\/span><\/h3>\n<p>The person with ME\/CFS, (or primary carer if severely affected) should email the research supervisor Dr Nina Muirhead\u00a0 \u00a0 <a href=\"mailto:nina.muirhead@nhs.net\" target=\"_blank\" rel=\"noopener noreferrer\">nina.muirhead@nhs.net<\/a><\/p>\n<p>Give your\u00a0home address and state:<\/p>\n<p style=\"padding-left: 40px;\"><em>&#8216;I and my family would like to volunteer to be part of a pilot study to look at the impact of ME\/CFS on quality of life for both the patient and their families&#8217;.<\/em><\/p>\n<p><a href=\"http:\/\/wames.org.uk\/cms-english\/2019\/03\/impact-of-me-cfs-on-patients-their-family-volunteers-needed\/logo-cardiff-medicine\/\" rel=\"attachment wp-att-19887\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright wp-image-19887 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine-300x98.png?resize=300%2C98\" alt=\"\" width=\"300\" height=\"98\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?resize=300%2C98&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?resize=150%2C49&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?w=393&amp;ssl=1 393w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/98;\" \/><\/a><a href=\"https:\/\/www.cardiff.ac.uk\/medicine\" target=\"_blank\" rel=\"noopener noreferrer\">University of Cardiff, School of Medicine<\/a><br \/>\nUHW Main Building, Heath Park<br \/>\nCardiff<span style=\"color: #383735;\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/span>CF14 4XN<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Impact of ME\/CFS on patients &amp; their family: \u00a0a clinical research study\u00a0by a third-year medical student at Cardiff University &nbsp; Aim of the project: The aim of this project is to gain a better insight into the many ways in &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/impact-of-me-cfs-on-patients-their-family-volunteers-needed\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4056,4680,789,4880,744,4879],"class_list":["post-19571","post","type-post","status-publish","format-standard","hentry","category-news","tag-cardiff-university","tag-dr-nina-muirhead","tag-families","tag-meical-student","tag-quality-of-life-research","tag-research-study"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-55F","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/19571","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=19571"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/19571\/revisions"}],"predecessor-version":[{"id":19889,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/19571\/revisions\/19889"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=19571"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=19571"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=19571"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}