{"id":20187,"date":"2019-03-26T08:27:19","date_gmt":"2019-03-26T08:27:19","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=20187"},"modified":"2019-03-26T08:27:19","modified_gmt":"2019-03-26T08:27:19","slug":"acceptance-and-identity-change-carers-experiences-in-me-cfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/acceptance-and-identity-change-carers-experiences-in-me-cfs\/","title":{"rendered":"Acceptance and identity change&#8230; carers&#8217; experiences in ME\/CFS"},"content":{"rendered":"<h3><a href=\"https:\/\/journals.sagepub.com\/doi\/full\/10.1177\/1359105319834678\" target=\"_blank\" rel=\"noopener noreferrer\">Acceptance and identity change: An interpretative phenomenological analysis of carers&#8217; experiences in myalgic encephalopathy\/chronic fatigue syndrome<\/a>, by Sarah Catchpole, Gulcan Garip, in Journal of Health Psychology, March 21, 2019<\/h3>\n<p>&nbsp;<\/p>\n<p><strong>Research abstract:<\/strong><\/p>\n<p><a href=\"http:\/\/wames.org.uk\/cms-english\/2019\/03\/acceptance-and-identity-change-carers-experiences-in-me-cfs\/care-tag-cloud\/\" rel=\"attachment wp-att-20261\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-20261 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/care-tag-cloud-300x232.jpg?resize=300%2C232\" alt=\"Care cloud tag image by John Hain from Pixabay \" width=\"300\" height=\"232\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/care-tag-cloud.jpg?resize=300%2C232&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/care-tag-cloud.jpg?resize=150%2C116&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/care-tag-cloud.jpg?resize=768%2C593&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/care-tag-cloud.jpg?resize=1024%2C791&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/care-tag-cloud.jpg?w=1280&amp;ssl=1 1280w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/232;\" \/><\/a>Myalgic encephalopathy\/chronic fatigue syndrome is a debilitating condition and many people rely heavily on family carers. This study explored the caring experiences of seven family carers. Four themes were established: relations with others, role and identity changes, coping with change and uncertainty, and information and support seeking.<\/p>\n<p>Caring disrupted multiple areas of carers&#8217; lives, including their identities and relationships. Scepticism from others about myalgic encephalopathy\/chronic fatigue syndrome was particularly distressing.<\/p>\n<p>Acceptance was important for coping and helped some carers achieve positive growth within spousal relationships. Improving support and advice for carers and acknowledging their caring burden could improve their well-being.<\/p>\n<p><a href=\"http:\/\/sci-hub.tw\/10.1177\/1359105319834678\" target=\"_blank\" rel=\"noopener noreferrer\">Read full article<\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Acceptance and identity change: An interpretative phenomenological analysis of carers&#8217; experiences in myalgic encephalopathy\/chronic fatigue syndrome, by Sarah Catchpole, Gulcan Garip, in Journal of Health Psychology, March 21, 2019 &nbsp; Research abstract: Myalgic encephalopathy\/chronic fatigue syndrome is a debilitating condition &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/acceptance-and-identity-change-carers-experiences-in-me-cfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[2954,662,4921,4920],"class_list":["post-20187","post","type-post","status-publish","format-standard","hentry","category-news","tag-acceptance","tag-caring","tag-gulcan-garip","tag-sarah-catchpole"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-5fB","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/20187","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=20187"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/20187\/revisions"}],"predecessor-version":[{"id":20263,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/20187\/revisions\/20263"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=20187"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=20187"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=20187"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}