{"id":2034,"date":"2013-05-08T14:08:02","date_gmt":"2013-05-08T14:08:02","guid":{"rendered":"http:\/\/wames.org.uk\/cms-english\/?p=2034"},"modified":"2013-05-08T14:08:02","modified_gmt":"2013-05-08T14:08:02","slug":"couples-experiences-of-interacting-with-others-in-cfs-a-qualitative-study","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/couples-experiences-of-interacting-with-others-in-cfs-a-qualitative-study\/","title":{"rendered":"Couples’ experiences of interacting with others in CFS: a qualitative study"},"content":{"rendered":"

Abstract<\/strong><\/p>\n

Objectives:<\/strong> Social isolation and stigma are frequently reported by patients with chronic fatigue syndrome\/myalgic encephalomyelitis and relationships in the home environment with those close to the patients (their \u2018significant others<\/a>\u2019) may thus be particularly important. Rather little attention has yet been paid to the beliefs and experiences of \u2018significant others\u2019 themselves in this context. This study sought to explore in-depth the beliefs and experiences of both patients and \u2018significant others\u2019 in relation to chronic fatigue syndrome\/myalgic encephalomyelitis.<\/p>\n

Methods<\/strong>: In-depth interviews using a semi-structured interview schedule designed around the core constructs of the Common-Sense Model of self-regulation<\/a> were conducted with two patients with chronic fatigue syndrome\/myalgic encephalomyelitis and their spouses. Interpretative Phenomenological Analysis<\/a> was used to analyse interview data.<\/p>\n

Results<\/strong>: Experiences of social interactions in relation to chronic fatigue syndrome\/myalgic encephalomyelitis with others outside of the relationship dyad<\/a> emerged as a key issue for all participants when reflecting on their experiences of living with the condition. These concerns are presented under two themes: interactions with healthcare professionals and interactions with the social world.<\/p>\n

Conclusions:<\/strong> It is evident that significant others play an important role in the lived experience of chronic fatigue syndrome\/myalgic encephalomyelitis. For both patients and significant others, the wider social world and interactions with outside others may be important influences on dyadic<\/a> coping in chronic fatigue syndrome\/myalgic encephalomyelitis. Both future research and treatment interventions could usefully include a \u2018significant other\u2019 perspective.<\/p>\n

Couples’ experiences of interacting with outside others in chronic fatigue syndrome: a qualitative study<\/em><\/a>.\u00a0 Joanna Brooks, Nigel King, Alison Wearden\u00a0 Chronic Illness<\/abbr> April 12, 2013 [Epub ahead of print]<\/p>\n

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Abstract Objectives: Social isolation and stigma are frequently reported by patients with chronic fatigue syndrome\/myalgic encephalomyelitis and relationships in the home environment with those close to the patients (their \u2018significant others\u2019) may thus be particularly important. Rather little attention has … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[401,400,397,396,399,398],"class_list":["post-2034","post","type-post","status-publish","format-standard","hentry","category-news","tag-alison-wearden","tag-chronic-illness","tag-joanna-brooks","tag-nigel-king","tag-relationships","tag-significant-others"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-wO","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/2034","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=2034"}],"version-history":[{"count":2,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/2034\/revisions"}],"predecessor-version":[{"id":2067,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/2034\/revisions\/2067"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=2034"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=2034"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=2034"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}