{"id":21084,"date":"2019-05-12T06:50:15","date_gmt":"2019-05-12T06:50:15","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=21084"},"modified":"2019-08-04T15:52:40","modified_gmt":"2019-08-04T15:52:40","slug":"in-the-news-missing-from-their-lives-missing-from-healthcare-services","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/in-the-news-missing-from-their-lives-missing-from-healthcare-services\/","title":{"rendered":"In the news: Missing from their lives, missing from healthcare services"},"content":{"rendered":"<h2><strong>ME Awareness week &#8211; in the BBC news in Wales<\/strong><\/h2>\n<h3><\/h3>\n<h3 style=\"padding-left: 40px;\"><strong>&#8220;All round the world millions of people are missing from their lives. In Wales people are also missing from the healthcare system.\u00a0 When we go to the surgery we&#8217;re not always treated with respect. Sometimes our illness is dismissed. Too few GPs have the knowledge to diagnose accurately and for those who are bedbound and housebound they can&#8217;t always get anyone to come and visit them ,so basically we feel invisible and ignored.&#8221;\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong>\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Jan Russell, chair of WAMES<\/h3>\n<p>BBC Wales featured ME on the radio, TV news and online on 10th and 11th May 2019.<\/p>\n<p><strong><a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/05\/in-the-news-missing-from-their-lives-missing-from-healthcare-services\/jan-2019\/\" rel=\"attachment wp-att-21086\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-21086 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Jan-2019.jpg?resize=300%2C218&#038;ssl=1\" alt=\"\" width=\"300\" height=\"218\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Jan-2019.jpg?resize=300%2C218&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Jan-2019.jpg?resize=150%2C109&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Jan-2019.jpg?w=692&amp;ssl=1 692w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/218;\" \/><\/a>BBC Radio Wales<\/strong>: <a href=\"https:\/\/www.bbc.co.uk\/sounds\/play\/m000516x\" target=\"_blank\" rel=\"noopener noreferrer\">Good Morning Wales<\/a>, 11 May 2019. The programme covered the nature of ME, healthcare in Wales &amp; the #MillionsMissing event.<\/p>\n<ul>\n<li>An interview with Clare Ogden from AfME took place between 05:40 &#8211; 10:00 minutes.<\/li>\n<li>From 36:40-43:20 Jan Russell from WAMES spoke and parent Alana Sargent from Tylerstown was interviewed.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><strong><a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/05\/in-the-news-missing-from-their-lives-missing-from-healthcare-services\/2019-cardiff-shoes\/\" rel=\"attachment wp-att-21085\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignleft size-medium wp-image-21085 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/2019-Cardiff-shoes.jpg?resize=300%2C146&#038;ssl=1\" alt=\"\" width=\"300\" height=\"146\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/2019-Cardiff-shoes.jpg?resize=300%2C146&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/2019-Cardiff-shoes.jpg?resize=150%2C73&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/2019-Cardiff-shoes.jpg?resize=768%2C373&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/2019-Cardiff-shoes.jpg?w=822&amp;ssl=1 822w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/146;\" \/><\/a>BBC Wales:<\/strong> <a href=\"https:\/\/www.bbc.co.uk\/news\/uk-wales-48229907\" target=\"_blank\" rel=\"noopener noreferrer\">Wales Today<\/a> on Sat evening, featured the #MillionsMissing event in Cardiff, Marian Gray from Aberystwyth,\u00a0 comments from Jan Russell of WAMES and Emelyne Burkhardt from MESiG from 02:00 &#8211; 04:12.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>BBC news online:<\/strong> <a href=\"https:\/\/www.bbc.co.uk\/news\/uk-wales-48229907\" target=\"_blank\" rel=\"noopener noreferrer\">Humanitarian crisis for ME sufferers in Wales<\/a>. The online article covers how people go missing from their lives, GPs find it difficult to diagnose &amp; little improvement has been seen in service development. Comments from Marian Gray from Aberystwyth, Jan Russell from WAMES, Miriam Wood from MESiG and Dr Peter Saul from the RCGP.<\/p>\n<p class=\"story-body__introduction\" style=\"padding-left: 40px;\"><a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/05\/bbc-wales-news-humanitarian-crisis-for-me-sufferers-in-wales\/marian-gray\/\" rel=\"attachment wp-att-21076\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-21076 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Marian-Gray.jpg?resize=300%2C169&#038;ssl=1\" alt=\"\" width=\"300\" height=\"169\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Marian-Gray.jpg?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Marian-Gray.jpg?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/05\/Marian-Gray.jpg?w=660&amp;ssl=1 660w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/169;\" \/><\/a>&#8220;People thought I&#8217;d moved away or joined a nunnery&#8221;, said Marian Gray, who admits going &#8220;missing from life&#8221;.<\/p>\n<p style=\"padding-left: 40px;\">She disappeared because she was one of the 13,000 people in Wales battling ME.<\/p>\n<p style=\"padding-left: 40px;\">Campaigners say there is a &#8220;humanitarian crisis&#8221; and promises of better support from the Welsh Government have failed to materialise.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ME Awareness week &#8211; in the BBC news in Wales &#8220;All round the world millions of people are missing from their lives. In Wales people are also missing from the healthcare system.\u00a0 When we go to the surgery we&#8217;re not &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/in-the-news-missing-from-their-lives-missing-from-healthcare-services\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[2811,5025,5024,5027,5026,2192,5022,5023],"class_list":["post-21084","post","type-post","status-publish","format-standard","hentry","category-news","tag-millionsmissing","tag-alana-sargeant","tag-clare-ogden","tag-dr-peter-saul","tag-emelyne-burkhardt","tag-jan-russell","tag-marian-gray","tag-miriam-wood"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-5u4","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/21084","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=21084"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/21084\/revisions"}],"predecessor-version":[{"id":21090,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/21084\/revisions\/21090"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=21084"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=21084"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=21084"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}