{"id":21381,"date":"2019-06-10T11:01:34","date_gmt":"2019-06-10T11:01:34","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=21381"},"modified":"2019-06-17T05:58:51","modified_gmt":"2019-06-17T05:58:51","slug":"healthcare-services-for-people-with-me-cfs-in-wales-your-views-needed","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/healthcare-services-for-people-with-me-cfs-in-wales-your-views-needed\/","title":{"rendered":"Healthcare services for people with ME &#038; CFS in Wales &#8211; your views needed"},"content":{"rendered":"<h2 style=\"text-align: center;\"><strong>Healthcare services for people with ME &amp; CFS in Wales<\/strong><\/h2>\n<p style=\"text-align: center;\">a clinical research study by a third-year medical student at Cardiff University<\/p>\n<h3 style=\"text-align: left;\"><strong><a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/06\/healthcare-services-for-people-with-me-cfs-in-wales-your-views-needed\/medical-background\/\" rel=\"attachment wp-att-21391\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright wp-image-21391 size-large lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/letters-medical.jpg?resize=640%2C416&#038;ssl=1\" alt=\"\" width=\"640\" height=\"416\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 640px; --smush-placeholder-aspect-ratio: 640\/416;\" \/><\/a>Aim of the project:<\/strong><\/h3>\n<p>&nbsp;<\/p>\n<p style=\"text-align: left;\">The aim of this project is to better understand healthcare services for people with ME\/CFS in all areas of Wales.<\/p>\n<p>&nbsp;<\/p>\n<h3><strong>You are invited to give your experiences of healthcare services:<\/strong><\/h3>\n<ul>\n<li>all participants must be\u00a0at least 18 years of age<\/li>\n<li>participants should have a diagnosis of ME\/CFS made by a doctor or practicing healthcare professional<\/li>\n<li>participation is voluntary and your responses will be kept confidential<\/li>\n<li>it is important to get an accurate picture of services (both good and bad) in every part of Wales \u2013 please encourage as many people to take part as possible. Download flyer: <a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/06\/healthcare-services-for-people-with-me-cfs-in-wales-your-views-needed\/healthcare-services-for-people-with-me\/\" rel=\"attachment wp-att-21394\">Healthcare services for people with ME<\/a><\/li>\n<\/ul>\n<p>The results will also be presented to health boards and the national steering group for ME\/CFS services, to aid future planning for services.<\/p>\n<p><strong>The <a href=\"https:\/\/forms.office.com\/Pages\/ResponsePage.aspx?id=MEu3vWiVVki9vwZ1l3j8vDPAx3qy7fFMvm-eUp62aONUNldMM1VCSDJKWDU5T0NSTlpGVVpNS1hDMi4u\" target=\"_blank\" rel=\"noopener noreferrer\">questionnaire is online<\/a> and the deadline for responses is 20th June 2019<\/strong><\/p>\n<h3><strong><a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/06\/healthcare-services-for-people-with-me-cfs-in-wales-your-views-needed\/laptop-idea\/\" rel=\"attachment wp-att-21392\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignleft wp-image-21392 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/man-lightbulb-small.jpg?resize=159%2C237&#038;ssl=1\" alt=\"\" width=\"159\" height=\"237\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/man-lightbulb-small.jpg?resize=201%2C300&amp;ssl=1 201w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/man-lightbulb-small.jpg?resize=100%2C150&amp;ssl=1 100w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/man-lightbulb-small.jpg?resize=768%2C1147&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/man-lightbulb-small.jpg?resize=686%2C1024&amp;ssl=1 686w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/06\/man-lightbulb-small.jpg?w=800&amp;ssl=1 800w\" data-sizes=\"(max-width: 159px) 100vw, 159px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 159px; --smush-placeholder-aspect-ratio: 159\/237;\" \/><\/a>Please note<\/strong><\/h3>\n<p>There is an opportunity to add comments about your experience, but you will be unable to save your answers and complete the questionnaire over more than one sitting.<\/p>\n<p>To make it easier to pace yourself, you should read all the questions before beginning to answer. Then, if you wish to take time to write some comments, you can add them by cutting and pasting into the questionnaire.\u00a0 <a href=\"https:\/\/tinyurl.com\/y2vu2vfq\">https:\/\/tinyurl.com\/y2vu2vfq<\/a><\/p>\n<p><strong>Do you have\u00a0questions?<\/strong><\/p>\n<p>The person with ME\/CFS, (or primary carer if severely affected) should email the researcher <a href=\"mailto:Richardsonh5@cardiff.ac.uk\">Richardsonh5@cardiff.ac.uk<\/a> or research supervisor Dr Nina Muirhead <a href=\"mailto:nina.muirhead@nhs.net\">nina.muirhead@nhs.net<\/a><\/p>\n<p><a href=\"https:\/\/wames.org.uk\/cms-english\/2019\/03\/impact-of-me-cfs-on-patients-their-family-volunteers-needed\/logo-cardiff-medicine\/\" rel=\"attachment wp-att-19887\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"size-medium wp-image-19887 alignright lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?resize=300%2C98&#038;ssl=1\" alt=\"\" width=\"300\" height=\"98\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?resize=300%2C98&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?resize=150%2C49&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/03\/logo-cardiff-medicine.png?w=393&amp;ssl=1 393w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/98;\" \/><\/a>University of Cardiff, School of Medicine<br \/>\nUHW Main Building, Heath Park<br \/>\nCardiff\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 CF14 4XN<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Healthcare services for people with ME &amp; CFS in Wales a clinical research study by a third-year medical student at Cardiff University Aim of the project: &nbsp; The aim of this project is to better understand healthcare services for people &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/healthcare-services-for-people-with-me-cfs-in-wales-your-views-needed\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4056,4680,2632,161],"class_list":["post-21381","post","type-post","status-publish","format-standard","hentry","category-news","tag-cardiff-university","tag-dr-nina-muirhead","tag-healthcare-services","tag-survey"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-5yR","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/21381","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=21381"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/21381\/revisions"}],"predecessor-version":[{"id":21475,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/21381\/revisions\/21475"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=21381"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=21381"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=21381"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}