{"id":23116,"date":"2019-11-14T21:51:03","date_gmt":"2019-11-14T21:51:03","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=23116"},"modified":"2019-11-19T08:28:24","modified_gmt":"2019-11-19T08:28:24","slug":"survey-of-severe-me-help-inform-the-nice-guidelines","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/survey-of-severe-me-help-inform-the-nice-guidelines\/","title":{"rendered":"Survey of severe ME &#8211; help inform the NICE guidelines"},"content":{"rendered":"<h2><strong>Survey of severe ME<\/strong><\/h2>\n<p><a href=\"https:\/\/wames.org.uk\/cms-english\/survey-of-severe-me-help-inform-the-nice-guidelines\/keith-geraghty\/\" rel=\"attachment wp-att-23120\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignleft size-full wp-image-23120 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/11\/Keith-Geraghty.jpg?resize=225%2C225&#038;ssl=1\" alt=\"\" width=\"225\" height=\"225\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/11\/Keith-Geraghty.jpg?w=225&amp;ssl=1 225w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2019\/11\/Keith-Geraghty.jpg?resize=150%2C150&amp;ssl=1 150w\" data-sizes=\"(max-width: 225px) 100vw, 225px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 225px; --smush-placeholder-aspect-ratio: 225\/225;\" \/><\/a><a href=\"https:\/\/www.research.manchester.ac.uk\/portal\/keith.geraghty.html\" target=\"_blank\" rel=\"noopener noreferrer\">Dr Keith Geraghty<\/a> &amp; Manchester University are conducting a study to better understand the needs and views of patients\u00a0with severe ME\/CFS.<\/p>\n<p>This project has been commissioned by the <a href=\"https:\/\/www.nice.org.uk\/\" target=\"_blank\" rel=\"noopener noreferrer\">National Institute of Health and Care Excellence <\/a>(NICE) to \u00a0provide them with up-to-date information that might help inform the NICE Guideline Committee as they to undertake a <a href=\"https:\/\/www.nice.org.uk\/guidance\/indevelopment\/gid-ng10091\" target=\"_blank\" rel=\"noopener noreferrer\">review of treatment guidelines<\/a> for this illness.<\/p>\n<h3><strong><a href=\"https:\/\/wames.org.uk\/cms-english\/defining-the-prevalence-symptom-burden-of-those-with-self-reported-severe-cfs-me\/girl-in-bed\/\" rel=\"attachment wp-att-18104\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-18104 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/girl-in-bed.jpg?resize=300%2C200&#038;ssl=1\" alt=\"\" width=\"300\" height=\"200\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/girl-in-bed.jpg?resize=300%2C200&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/girl-in-bed.jpg?resize=150%2C100&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/girl-in-bed.jpg?w=400&amp;ssl=1 400w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/200;\" \/><\/a>Who is eligible to take part?<\/strong><\/h3>\n<ul>\n<li>adults aged 18 and over, living in England &amp; Wales.<\/li>\n<li>they want to hear from you if <em>you<\/em> consider you have been severely affected \/ limited by ME.<\/li>\n<li>If that was in the past and you have improved, they still want to hear from you.<\/li>\n<\/ul>\n<h3><strong>About the questionnaire<\/strong><\/h3>\n<ul>\n<li>Short deadline to meet NICE&#8217;s requirements: 20th November<\/li>\n<li>Available online only, but you can preview the questions <a href=\"https:\/\/wames.org.uk\/cms-english\/?attachment_id=23122\" target=\"_blank\" rel=\"noopener noreferrer\">here<\/a><\/li>\n<li>It could take 45 mins to complete but you can save pages to pace yourself.<\/li>\n<\/ul>\n<h3><strong>If you change your mind<\/strong><\/h3>\n<p>You are able to opt out of this study within 2 weeks after you complete the online survey. After this time your data may form part of a report or dataset that cannot be changed. You can have your personal details deleted at anytime.<\/p>\n<h3><strong>More information &amp; to take part in the survey: <\/strong><a href=\"https:\/\/t.co\/aas8FKNq4C\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/t.co\/aas8FKNq4C<\/a><\/h3>\n","protected":false},"excerpt":{"rendered":"<p>Survey of severe ME Dr Keith Geraghty &amp; Manchester University are conducting a study to better understand the needs and views of patients\u00a0with severe ME\/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/survey-of-severe-me-help-inform-the-nice-guidelines\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[2719,1230,199,36,161],"class_list":["post-23116","post","type-post","status-publish","format-standard","hentry","category-news","tag-dr-keith-geraghty","tag-national-institute-for-health-and-care-excellence","tag-nice","tag-severe-me","tag-survey"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-60Q","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/23116","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=23116"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/23116\/revisions"}],"predecessor-version":[{"id":23172,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/23116\/revisions\/23172"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=23116"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=23116"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=23116"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}