{"id":23673,"date":"2020-06-26T08:56:40","date_gmt":"2020-06-26T08:56:40","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=23673"},"modified":"2020-06-26T08:57:04","modified_gmt":"2020-06-26T08:57:04","slug":"economic-burden-of-me-cfs-to-patients-comparative-study","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/economic-burden-of-me-cfs-to-patients-comparative-study\/","title":{"rendered":"Economic burden of ME\/CFS to patients: comparative study"},"content":{"rendered":"<h3><a href=\"https:\/\/sci-hub.tw\/10.1016\/j.jval.2019.09.2671\" target=\"_blank\" rel=\"noopener noreferrer\">Economic burden of Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS) to patients: comparative study<\/a>, by D Araja, E Brenna, RM Hunter, D Pheby, U Berkis, A Lunga, M Murovska <span style=\"text-decoration: underline;\">in<\/span> <em>Value in Health<\/em>, Vol 22, Supp 3, Nov 2019, Page S909 [https:\/\/doi.org\/10.1016\/j.jval.2019.09.2671] ABSTRACT ONLY<\/h3>\n<p>&nbsp;<\/p>\n<h3><strong>Abstract:<\/strong><\/h3>\n<p><strong>Objectives:<\/strong><\/p>\n<p>Research is performed in framework of COST (European Cooperation inScience and Technology) Action 15111 EUROMENE (European Myalgic Encephalo-myelitis\/Chronic Fatigue Syndrome (ME\/CFS) Research Network) to investigate the opportunities for evaluation of economic impact of ME\/CFS to patients.<\/p>\n<p><strong>Methods:<\/strong><\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-26762 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/06\/pound-euro-money.jpg?resize=300%2C192&#038;ssl=1\" alt=\"\" width=\"300\" height=\"192\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/06\/pound-euro-money.jpg?resize=300%2C192&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/06\/pound-euro-money.jpg?resize=150%2C96&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/06\/pound-euro-money.jpg?w=565&amp;ssl=1 565w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/192;\" \/>To achieve the objectives of this research, a study based on patient-reported survey has been carried out in Latvia, Italy and the United Kingdom (UK). The survey included questions concerning the socio-economic consequences of the disease, particularly regarding the health care costs. For data processing and analysis, the methods of economic analysis and statistical analysis are embraced.<\/p>\n<p><strong>Results:<\/strong><\/p>\n<p>In <strong>Latvia<\/strong> the survey has been launched with coverage of 100 patients (with dominance income of \u20ac500 per household member monthly). The results show that 1% of respondents spend more than \u20ac100 as an out-pocket payment for medicines and health care services monthly, 1.8% spend \u20ac51-100 for medicines, health care services and food supplements monthly, 17.2% spend \u20ac21-50, and 80% of respondents spend until \u20ac20 monthly to reduce the ME\/CFS consequences.<\/p>\n<p>The study performed in <strong>Italy<\/strong> with 87 participants suffered by ME\/CFS found that 23% were unemployed and 55% had an income less than \u20ac15.000 annually. Patients spend average \u20ac210 monthly on medication and therapy.<\/p>\n<p>A study conducted in the <strong>UK<\/strong> covered 262 patients with ME\/CFS and healthy controls. The analysis shows marked lower economic well-being of people with ME\/CFS in comparison with healthy controls. Average adjusted income for participants with CFS\/ME was \u00a312.242, but for healthy controls -\u00a323.126. Considering the prevalence of ME\/CFS in the UK population, the total cost of illness was estimated at \u00a31.713 million per year.<\/p>\n<p><strong>Conclusions:<\/strong><\/p>\n<p>The patient-reported outcomes is a significant tool to collect the data for evaluation of socio-economic impact of ME\/CFS, but for comparative studies the purchasing power parities should be taken into account.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Economic burden of Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS) to patients: comparative study, by D Araja, E Brenna, RM Hunter, D Pheby, U Berkis, A Lunga, M Murovska in Value in Health, Vol 22, Supp 3, Nov 2019, Page S909 [https:\/\/doi.org\/10.1016\/j.jval.2019.09.2671] &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/economic-burden-of-me-cfs-to-patients-comparative-study\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[5990,874,5780,5989,5784,5781,3929,5991,1664,5992,5776,5782],"class_list":["post-23673","post","type-post","status-publish","format-standard","hentry","category-news","tag-a-lunga","tag-derek-pheby","tag-diana-araja","tag-dr-modra-murovska","tag-economic-impact","tag-elenka-brenna","tag-euromene","tag-european-myalgic-encephalo-myelitis-chronic-fatigue-syndrome-me-cfs-research-network","tag-italy","tag-latvia","tag-rachael-m-hunter","tag-uldis-berkis"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-69P","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/23673","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=23673"}],"version-history":[{"count":5,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/23673\/revisions"}],"predecessor-version":[{"id":26764,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/23673\/revisions\/26764"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=23673"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=23673"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=23673"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}