{"id":24045,"date":"2020-01-28T21:40:48","date_gmt":"2020-01-28T21:40:48","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=24045"},"modified":"2020-02-10T01:59:30","modified_gmt":"2020-02-10T01:59:30","slug":"the-prevalence-of-pediatric-me-cfs-in-a-community%e2%80%91based-sample","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/the-prevalence-of-pediatric-me-cfs-in-a-community%e2%80%91based-sample\/","title":{"rendered":"The prevalence of pediatric ME\/CFS in a community\u2011based sample"},"content":{"rendered":"<h3><a href=\"https:\/\/link.springer.com\/article\/10.1007%2Fs10566-019-09543-3\" target=\"_blank\" rel=\"noopener noreferrer\">The prevalence of pediatric Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome\u00a0 in a community\u2011based sample<\/a>, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler &amp; Shaun Bhatia <span style=\"text-decoration: underline;\">in<\/span> <em>Child &amp; Youth Care Forum<\/em>, 23 January 2020 [doi.org\/10.1007\/s10566-019-09543-3]<\/h3>\n<p>&nbsp;<\/p>\n<h3><strong>Research abstract:<\/strong><\/h3>\n<p><strong>Background:<\/strong><br \/>\nMost pediatric <a href=\"https:\/\/dictionary.cambridge.org\/dictionary\/english\/prevalence\" target=\"_blank\" rel=\"noopener noreferrer\">prevalence<\/a> studies of myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS) have been based upon data from tertiary care centers, a process known for systematic biases such as excluding youth of lower socioeconomic status and those less likely to have access to health care. In addition, most pediatric ME\/CFS epidemiologic studies have not included a thorough medical and psychiatric examination. The purpose of this study was to determine the prevalence of pediatric ME\/CFS from an ethnically and sociodemographically diverse community-based random sample.<\/p>\n<p><strong>Method:<\/strong><br \/>\nA sample of 10,119 youth aged 5\u201317 from 5622 households in the Chicagoland area were screened. Following evaluations, a team of physicians made final diagnoses. Youth were given a diagnosis of ME\/CFS if they met criteria for three selected case definitions. A probabilistic, multi-stage formula was used for final prevalence calculations.<\/p>\n<p><strong>Results:<\/strong><br \/>\n<a href=\"https:\/\/wames.org.uk\/cms-english\/the-prevalence-of-pediatric-me-cfs-in-a-community%e2%80%91based-sample\/african-american-teenagers\/\" rel=\"attachment wp-att-24078\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright wp-image-24078 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/01\/African-American-teenagers.jpg?resize=300%2C200&#038;ssl=1\" alt=\"\" width=\"300\" height=\"200\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/01\/African-American-teenagers.jpg?resize=300%2C200&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/01\/African-American-teenagers.jpg?resize=150%2C100&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/01\/African-American-teenagers.jpg?w=640&amp;ssl=1 640w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/200;\" \/><\/a>The prevalence of pediatric ME\/CFS was 0.75%, with a higher percentage being African American and Latino than Caucasian. Of the youth diagnosed with ME\/CFS, less than 5% had been previously diagnosed with the illness.<\/p>\n<p><strong>Conclusions:<\/strong><br \/>\nMany youth with the illness have not been previously diagnosed with ME\/CFS. These findings point to the need for better ways to identify and diagnose youth with this illness.<\/p>\n<p><a href=\"https:\/\/sci-hub.se\/10.1007\/s10566-019-09543-3\" target=\"_blank\" rel=\"noopener noreferrer\">Read full paper<\/a><\/p>\n<p><strong>Press release<\/strong>: <a href=\"https:\/\/resources.depaul.edu\/newsroom\/news\/press-releases\/Pages\/mecfs_Jason2020.aspx\" target=\"_blank\" rel=\"noopener noreferrer\">Study finds many youth living with undiagnosed chronic fatigue syndrome<\/a><\/p>\n<p><a href=\"https:\/\/depauliaonline.com\/46034\/news\/depaul-researchers-unmask-misunderstood-chronic-illness\/\" target=\"_blank\" rel=\"noopener noreferrer\">DePaul researchers unmask misunderstood chronic illness<\/a><\/p>\n<p><strong>Simon McGrath<\/strong>: <a href=\"https:\/\/mecfsresearchreview.me\/2020\/02\/04\/leonard-jason-research-finds-that-many-young-people-have-me-cfs\/\" target=\"_blank\" rel=\"noopener noreferrer\">Leonard Jason research finds that many young people have ME\/CFS<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The prevalence of pediatric Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome\u00a0 in a community\u2011based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler &amp; Shaun Bhatia in Child &amp; Youth Care Forum, 23 January 2020 [doi.org\/10.1007\/s10566-019-09543-3] &nbsp; Research &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/the-prevalence-of-pediatric-me-cfs-in-a-community%e2%80%91based-sample\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[4180,5569,5568,257,93,4614,3064,258,450,2241,4904,212],"class_list":["post-24045","post","type-post","status-publish","format-standard","hentry","category-news","tag-ben-z-katz","tag-chelsea-torres","tag-chicago","tag-children","tag-diagnosis","tag-joseph-cotler","tag-madison-l-sunnquist","tag-paediatric-me","tag-prevalence","tag-prof-leonard-jason","tag-shaun-bhatia","tag-young-people"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-6fP","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/24045","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=24045"}],"version-history":[{"count":9,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/24045\/revisions"}],"predecessor-version":[{"id":24326,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/24045\/revisions\/24326"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=24045"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=24045"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=24045"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}