{"id":24715,"date":"2020-05-20T07:28:53","date_gmt":"2020-05-20T07:28:53","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=24715"},"modified":"2020-05-20T15:10:49","modified_gmt":"2020-05-20T15:10:49","slug":"difficulties-of-living-with-an-illness-not-considered-a-disease-focusing-on-the-illness-behavior-of-me-cfs-patients","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/difficulties-of-living-with-an-illness-not-considered-a-disease-focusing-on-the-illness-behavior-of-me-cfs-patients\/","title":{"rendered":"Difficulties of living with an illness not considered a \u201cDisease\u201d: focusing on the illness behavior of ME\/CFS patients"},"content":{"rendered":"

Difficulties of living with an illness not considered a \u201cDisease\u201d: Focusing on the illness behavior of myalgic encephalomyelitis\/chronic fatigue syndrome patients<\/a>, by Natsuko Nojima in<\/span> Departmental Bulletin Paper, Osaka Human Sciences<\/em> Vol.6<\/h3>\n

 <\/p>\n

Paper abstract:<\/strong><\/p>\n

This paper focuses on the illness behavior of patients with myalgic encephalomyelitis\/ chronic fatigue syndrome (ME\/CFS) to clarify difficulties in their lives through comparison with a five-stage model of illness behavior.<\/p>\n

[Suchman is the one who describes the five stages of illness behavior namely: Symptoms, sick role, medical care contact, dependent client role, and recovery.] https:\/\/tinyurl.com\/ycbldvx8<\/a><\/p><\/blockquote>\n

ME\/CFS is considered a typical disease with medically unexplained symptoms (MUS), which refers to a condition where symptoms suggest the presence of a physical disease whose cause cannot be found by examination. Although previous studies of ME\/CFS have focused on specific events, such as diagnosis, and the psychological changes that accompany them, the chronological events experienced by patients and the transformation of the problems they face have not been adequately grasped.<\/p>\n

This paper analyzes ME\/CFS patients\u2019 illness behavior through interviews and explores the difficulties patients face at each stage of illness behavior. In ME\/CFS patients\u2019 narratives, their illness behavior shows complexities of going back and forth between stages, rather than progressing step by step like an acute illness.<\/p>\n

\"\"The seemingly excessive treatment behavior called \u201cdoctor shopping\u201d is actually linked to doctors\u2019 ignorance, suspicion, and incomprehension of diseases without a biomarker, rather than the desire of the patient to dispel an \u201cinappropriate\u201d label of laziness and mental illness. Indeed, it would be more accurate to say that interviewees were not accepted by several hospitals. In addition, since patients are often suspected of not being really ill even after diagnosis, they cannot experience the dependent-patient role.<\/p>\n

Therefore, by becoming an \u201cactive patient\u201d by themselves, ME\/CFS patients must undertake the \u201cindependent-patient role\u201d to secure necessary treatment and welfare services. It should be noted that these patient behaviors are not undertaken for secondary gain but are due to their having no other way to receive necessary care.<\/p>\n

NB Full paper not available<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Difficulties of living with an illness not considered a \u201cDisease\u201d: Focusing on the illness behavior of myalgic encephalomyelitis\/chronic fatigue syndrome patients, by Natsuko Nojima in Departmental Bulletin Paper, Osaka Human Sciences Vol.6   Paper abstract: This paper focuses on the … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[5906,5907],"class_list":["post-24715","post","type-post","status-publish","format-standard","hentry","category-news","tag-5-stages-of-illness-behaviour","tag-natsuko-nojima"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-6qD","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/24715","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=24715"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/24715\/revisions"}],"predecessor-version":[{"id":26197,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/24715\/revisions\/26197"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=24715"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=24715"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=24715"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}