{"id":25144,"date":"2020-03-30T20:06:55","date_gmt":"2020-03-30T19:06:55","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=25144"},"modified":"2021-07-27T09:43:32","modified_gmt":"2021-07-27T08:43:32","slug":"me-cfs-covid-19-information-for-you-your-doctor","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/me-cfs-covid-19-information-for-you-your-doctor\/","title":{"rendered":"ME\/CFS & Covid-19: information for you & your doctor"},"content":{"rendered":"

COVID-19 Information and Resources<\/a> – Bateman Horne Center, March 2020<\/strong><\/h2>\n

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Dr Lucinda Bateman<\/p><\/div>\n

The Bateman Horne Center works for the medical advancement and treatment of \u00a0Myalgic Encephalomyelitis\/ Chronic Fatigue Syndrome (ME\/CFS)and Fibromyalgia in Salt Lake City, Utah, USA.<\/p>\n

In addition to the resources for patients and doctors on ME\/CFS they have produced some briefing papers on Covid-19 and ME\/CFS, many of which are helpful people from anywhere in the world.<\/p>\n

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Dr Suzanne Vernon<\/p><\/div>\n

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Medical Director:<\/strong> Dr Lucinda Bateman<\/p>\n

Researcher<\/strong>: Dr Suzanne Vernon<\/p>\n

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Medical Considerations Letter<\/a>\u00a0<\/strong>\u2014 In the event you become acutely ill, the Medical Care Considerations Letter serves as a guiding resource for outside medical care intervention. The intent of this letter is to provide care professionals with further information about your illness of ME\/CFS and\/or severe FM to assist them with their medical intervention decisions.<\/p>\n

“you should assume they have a serious, chronic, multisystem illness that may negatively impact their prognosis”<\/em><\/p>\n

“Based on current evidence the underlying pathology of ME\/CFS involves energy metabolism, the nervous system, and the immune system.”<\/em><\/p>\n

COVID-19 and ME\/CFS\/FM Frequently Asked Questions<\/strong><\/a>: Drs. Bateman and Yellman answer specific questions about COVID-19 as it relates to ME\/CFS\/FM.<\/p>\n

e.g. Are people with ME\/CFS\/FM at a higher risk than the general public of dying from COVID-19 if contracted? … The immune dysregulation of ME\/CFS\/FM may reduce ability to fight viral infections. Additionally, the presence of chronic inflammation, allergies, asthma, mast-cell activation may pose additional risks.<\/p>\n

Suzanne D. Vernon, PhD, addresses:\u00a0SARS, CoV-2, and COVID-19<\/strong><\/a>: A scientific overview of COVID-19, infection\/transmission, testing, and treatments on the horizon.<\/p>\n

Advance Care Planning:<\/strong><\/a> The Advance Care Planning document provides guidance for establishing advanced-care-directives and POLST documents.<\/p>\n

Personal Guidance and Decision Making<\/strong><\/p>\n

e.g. Advance Directives: Everyone, not just those with ME\/CFS, should document end-of-life wishes on paper regarding aggressive medical care in a life-threatening situation. Discuss with family and medical professionals as needed.<\/span><\/em><\/p>\n

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Videos<\/strong><\/h3>\n