{"id":25322,"date":"2020-04-08T19:36:52","date_gmt":"2020-04-08T19:36:52","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=25322"},"modified":"2020-04-08T19:36:52","modified_gmt":"2020-04-08T19:36:52","slug":"the-development-of-a-consistent-europe-wide-approach-to-investigating-the-economic-impact-of-me-cfs","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/the-development-of-a-consistent-europe-wide-approach-to-investigating-the-economic-impact-of-me-cfs\/","title":{"rendered":"The development of a consistent Europe-wide approach to investigating the economic impact of ME\/CFS"},"content":{"rendered":"<h3><a href=\"https:\/\/research.bangor.ac.uk\/portal\/files\/28629143\/2020_Development_of_consistent_Europe_wide_approach.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME\/CFS): A Report from the European Network on ME\/CFS (EUROMENE)<\/a> by Derek FH Pheby, Diana Araja,\u00a0 Uldis Berkis, Elenka Brenna, John Cullinan, Jean-Dominique de Korwin, Lara Gitto, Dyfrig Hughes, Rachael M Hunter, Dominic Tr\u00e9pel, X Wang-Steverding <span style=\"text-decoration: underline;\">in<\/span> <em>Healthcare<\/em> 31 March 2020<\/h3>\n<p><i><span style=\"font-size: small;\">\u00a0<\/span><\/i><\/p>\n<h3><strong>Abstract:<\/strong><\/h3>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright wp-image-18129 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/EUROMENE.jpg?resize=300%2C378&#038;ssl=1\" alt=\"\" width=\"300\" height=\"378\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/EUROMENE.jpg?w=200&amp;ssl=1 200w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/EUROMENE.jpg?resize=119%2C150&amp;ssl=1 119w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/378;\" \/>We have developed a Europe-wide approach to investigating the economic impact of ME\/CFS, facilitating acquisition of information on the economic burden of ME\/CFS, and international comparisons of economic costs between countries.<\/p>\n<p>The economic burden of ME\/CFS in Europe appears large, with productivity losses most significant, giving scope for substantial savings through effective prevention and treatment. However, economic studies of ME\/CFS, including cost-of-illness analyses and economic evaluations of interventions, are problematic due to different, arbitrary case definitions, and unwillingness of doctors to diagnose it. We therefore lack accurate incidence and prevalence data, with no obvious way to estimate costs incurred by undiagnosed patients.<\/p>\n<p>Other problems include, as for other conditions, difficulties estimating direct and indirect costs incurred by healthcare systems, patients and families, and heterogeneous healthcare systems and patterns of economic development across countries.<\/p>\n<p>We have made recommendations, including use of the <a href=\"https:\/\/www.me-pedia.org\/wiki\/Fukuda_criteria\" target=\"_blank\" rel=\"noopener noreferrer\">Fukuda (CDC-1994<\/a>) case definition and <a href=\"https:\/\/www.me-pedia.org\/wiki\/Canadian_Consensus_Criteria\" target=\"_blank\" rel=\"noopener noreferrer\">Canadian Consensus Criteria<\/a> (CCC), a pan-European common symptom checklist, and implementation of prevalence-based cost-of-illness studies in different countries using an agreed data list.<\/p>\n<p>We recommend using\u00a0<a href=\"https:\/\/en.wikipedia.org\/wiki\/Purchasing_power_parity\" target=\"_blank\" rel=\"noopener noreferrer\">purchasing power parities<\/a> (PPP) to facilitate international comparisons, and <a href=\"https:\/\/en.wikipedia.org\/wiki\/EQ-5D\" target=\"_blank\" rel=\"noopener noreferrer\">EuroQol-5D<\/a> as a generic measure of health status and multi-attribute utility instrument to inform future economic evaluations in ME\/CFS.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME\/CFS): A Report from the European Network on ME\/CFS (EUROMENE) by Derek FH Pheby, Diana Araja,\u00a0 Uldis Berkis, Elenka Brenna, John Cullinan, Jean-Dominique de Korwin, &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/the-development-of-a-consistent-europe-wide-approach-to-investigating-the-economic-impact-of-me-cfs\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[5783,874,5780,5775,5777,5784,815,5781,3929,5536,5786,5778,5779,5785,5776,5782,5774],"class_list":["post-25322","post","type-post","status-publish","format-standard","hentry","category-news","tag-cost-of-illness-studuies","tag-derek-pheby","tag-diana-araja","tag-dominic-trepel","tag-dyfrig-hughes","tag-economic-impact","tag-economics","tag-elenka-brenna","tag-euromene","tag-european-network-on-me-cfs","tag-euroqol-5d","tag-jean-dominique-de-korwin","tag-john-cullinan","tag-pirchasing-power-parities","tag-rachael-m-hunter","tag-uldis-berkis","tag-x-wang-steverding"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-6Aq","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25322","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=25322"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25322\/revisions"}],"predecessor-version":[{"id":30801,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25322\/revisions\/30801"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=25322"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=25322"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=25322"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}