{"id":25671,"date":"2020-04-25T09:55:11","date_gmt":"2020-04-25T09:55:11","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=25671"},"modified":"2020-04-25T09:57:20","modified_gmt":"2020-04-25T09:57:20","slug":"self-isolating-with-me-tell-your-story-for-me-awareness-week","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/self-isolating-with-me-tell-your-story-for-me-awareness-week\/","title":{"rendered":"Self-isolating with ME \u2013 Tell your story for ME Awareness week"},"content":{"rendered":"<h2 style=\"text-align: center;\"><strong>Self-isolating with ME <\/strong><\/h2>\n<h2 style=\"text-align: center;\"><strong> Tell your story for ME Awareness week<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<h3>We&#8217;re hearing a lot about the joys and trials of being restricted to home when healthy or &#8216;at risk&#8217;. Many people with ME are however practised at &#8216;staying home&#8217; (or being housebound) while feeling very ill.<\/h3>\n<h3 style=\"text-align: center;\"><strong>ME Awareness week, 10-17 May 2020<\/strong><\/h3>\n<p>&nbsp;<\/p>\n<p>Help WAMES tell what self-isolation means for people with ME.<\/p>\n<p><strong>How does your ME self-isolation experience compare with the Covid-19 experience?<\/strong><\/p>\n<ul>\n<li>\n<div id=\"attachment_25673\" style=\"width: 310px\" class=\"wp-caption alignright\"><img data-recalc-dims=\"1\" decoding=\"async\" aria-describedby=\"caption-attachment-25673\" class=\"size-medium wp-image-25673 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/window-view.jpg?resize=300%2C200&#038;ssl=1\" alt=\"\" width=\"300\" height=\"200\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/window-view.jpg?resize=300%2C200&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/window-view.jpg?resize=1024%2C683&amp;ssl=1 1024w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/window-view.jpg?resize=150%2C100&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/window-view.jpg?resize=768%2C512&amp;ssl=1 768w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/window-view.jpg?w=1280&amp;ssl=1 1280w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/200;\" \/><p id=\"caption-attachment-25673\" class=\"wp-caption-text\">View from my window &#8211; 2 years 2 months<\/p><\/div>\n<p>the struggle to understand what was wrong with you<br \/>\ngrieving for your lost life<\/li>\n<li>learning to cope with new &amp; frightening symptoms<br \/>\ndepending on others in new &amp; unwelcome ways<\/li>\n<li>the uncertainty about recovery<\/li>\n<li>a changed relationship with your family and friends<\/li>\n<li>your contact, or lack of it, with the outside world<\/li>\n<li>how did you adapt &amp; find a quality of life &#8211; hobbies, education, work<\/li>\n<\/ul>\n<div id=\"attachment_25672\" style=\"width: 310px\" class=\"wp-caption alignright\"><img data-recalc-dims=\"1\" decoding=\"async\" aria-describedby=\"caption-attachment-25672\" class=\"wp-image-25672 size-medium lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/feet-bed-2.jpg?resize=300%2C219&#038;ssl=1\" alt=\"\" width=\"300\" height=\"219\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/feet-bed-2.jpg?resize=300%2C219&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/feet-bed-2.jpg?resize=150%2C109&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/feet-bed-2.jpg?w=528&amp;ssl=1 528w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/219;\" \/><p id=\"caption-attachment-25672\" class=\"wp-caption-text\">Isolated with ME &#8211; 2014-17<\/p><\/div>\n<p><strong>How has the C-19 lockdown affected you?<\/strong><\/p>\n<ul>\n<li>has it made life more difficult?<\/li>\n<li>has it opened up new experiences?<\/li>\n<li>brought back bad memories of being housebound in the past?<\/li>\n<li>is this your first experience of being housebound?<\/li>\n<li>is life less stressful, more lonely?<\/li>\n<li>have people understood your experience better?<\/li>\n<\/ul>\n<p><strong>Tell us<\/strong><\/p>\n<ul>\n<li>in prose, rhyme, photos, or through the arts<\/li>\n<li>one paragraph or photo, or a longer story<\/li>\n<li>send as many contributions as you like<\/li>\n<li>in English or Welsh<\/li>\n<li>use your name or pseudonym<\/li>\n<li>give us your permission to use your contributions to raise awareness<\/li>\n<li>send to jan@wames.org.uk\u00a0\u00a0or helpline@wames.org.uk<br \/>\nOr via the online form www.wames.org.uk<\/li>\n<\/ul>\n<p style=\"text-align: center;\"><strong>There may never be a better time to communicate our experience.<\/strong><br \/>\n<strong>So many people now know something of the frustrations of losing control of their future.<\/strong><br \/>\n<strong>Or have watched others suffer.<\/strong><\/p>\n<p><a href=\"https:\/\/wames.org.uk\/cms-english\/wp-content\/uploads\/2020\/04\/ME-Awareness-2020.docx\">Download this page in pdf<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Self-isolating with ME Tell your story for ME Awareness week &nbsp; We&#8217;re hearing a lot about the joys and trials of being restricted to home when healthy or &#8216;at risk&#8217;. Many people with ME are however practised at &#8216;staying home&#8217; &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/self-isolating-with-me-tell-your-story-for-me-awareness-week\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[101],"class_list":["post-25671","post","type-post","status-publish","format-standard","hentry","category-news","tag-me-awareness-week"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-6G3","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25671","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=25671"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25671\/revisions"}],"predecessor-version":[{"id":25677,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25671\/revisions\/25677"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=25671"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=25671"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=25671"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}