{"id":25976,"date":"2020-05-13T22:12:22","date_gmt":"2020-05-13T22:12:22","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=25976"},"modified":"2020-05-13T22:12:22","modified_gmt":"2020-05-13T22:12:22","slug":"staying-at-home-with-me-sarahs-story","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/staying-at-home-with-me-sarahs-story\/","title":{"rendered":"‘Staying at home’ with ME – Sarah’s story"},"content":{"rendered":"

ME Awareness week:<\/strong><\/span>
\n‘Staying at home’ with ME – Sarah’s story<\/strong><\/h2>\n

 <\/p>\n

Having had ME for 27 years I\u2019m not expecting to get better.<\/p>\n

\"\"Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity to noise, smells and light.<\/p>\n

Here\u2019s the set up in my bedroom – books, stitching, films and body cream – my skin is sensitive and itchy.<\/p>\n

Sometimes I can\u2019t pull the covers on my bed up as I don\u2019t have the energy. I have lots of covers even in summer because I\u2019m always cold.<\/p>\n

I no longer think much about my illness and no longer grieve what I\u2019ve lost in terms of career. I\u2019m sad I can\u2019t do things though, my low energy doesn\u2019t allow the swimming, cycling or walking I used to enjoy- I can still do some at a lower level.<\/p>\n

I never feel I\u2019m thinking clearly and often feel vague or unfocussed.<\/p>\n

Being housebound isn\u2019t a new experience for me. I\u2019m fortunate enough to live fairly comfortably and have some outside space. I even have a summerhouse so I can lie down in a different space.<\/p>\n

Sarah, South West Wales<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

ME Awareness week: ‘Staying at home’ with ME – Sarah’s story   Having had ME for 27 years I\u2019m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[138,5900],"class_list":["post-25976","post","type-post","status-publish","format-standard","hentry","category-news","tag-me-awareness","tag-sarah"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-6KY","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25976","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=25976"}],"version-history":[{"count":3,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25976\/revisions"}],"predecessor-version":[{"id":26121,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/25976\/revisions\/26121"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=25976"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=25976"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=25976"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}