{"id":28754,"date":"2021-02-21T15:42:27","date_gmt":"2021-02-21T15:42:27","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=28754"},"modified":"2021-02-21T15:42:27","modified_gmt":"2021-02-21T15:42:27","slug":"sick-of-the-sick-role-narratives-of-what-recovery-means-to-people-with-cfs-me","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/sick-of-the-sick-role-narratives-of-what-recovery-means-to-people-with-cfs-me\/","title":{"rendered":"Sick of the sick role: narratives of what &#8216;recovery&#8217; means to people with CFS\/ME"},"content":{"rendered":"<h3><a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/1049732320969395\" target=\"_blank\" rel=\"noopener\">Sick of the sick role: narratives of what \u201cRecovery\u201d means to people with CFS\/ME<\/a>, by Anna Cheshire, Damien Ridge, Lucy V Clark, Peter D White <span style=\"text-decoration: underline;\">in<\/span> <em>Qualitative Health Research<\/em> Vol 31, Issue 2, 2021 [doi.org\/10.1177\/1049732320969395]<\/h3>\n<p>&nbsp;<\/p>\n<h3><strong>Research abstract:<\/strong><\/h3>\n<p>Little is known about what recovery means to those with chronic fatigue syndrome\/ myalgic encephalomyelitis, a poorly understood, disabling chronic health condition.<\/p>\n<p>To explore this issue, semi-structured interviews were conducted with patients reporting improvement (n = 9) and deterioration (n = 10) after a guided self-help intervention, and analyzed via \u201cconstant comparison.\u201d<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"alignright size-medium wp-image-18134 lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/Girl-balancing-nature.jpg?resize=300%2C294&#038;ssl=1\" alt=\"\" width=\"300\" height=\"294\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/Girl-balancing-nature.jpg?resize=300%2C294&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/Girl-balancing-nature.jpg?resize=150%2C147&amp;ssl=1 150w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2018\/09\/Girl-balancing-nature.jpg?w=540&amp;ssl=1 540w\" data-sizes=\"(max-width: 300px) 100vw, 300px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 300px; --smush-placeholder-aspect-ratio: 300\/294;\" \/>The meaning of recovery differed between participants\u2014expectations for improvement and deployment of the sick role (and associated stigma) were key influences. While some saw recovery as complete freedom from symptoms, many defined it as freedom from the \u201c<a href=\"https:\/\/www.england.nhs.uk\/blog\/ed-mitchell-2\/\" target=\"_blank\" rel=\"noopener\">sick role,<\/a>\u201d with functionality prioritized. Others redefined recovery, reluctant to return to the lifestyle that may have contributed to their illness, or rejected the concept as unhelpful.<\/p>\n<p>Recovery is not always about eliminating all symptoms. Rather, it is a nexus between the reality of limited opportunities for full recovery, yet a strong desire to leave the illness behind and regain a sense of \u201cnormality.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Sick of the sick role: narratives of what \u201cRecovery\u201d means to people with CFS\/ME, by Anna Cheshire, Damien Ridge, Lucy V Clark, Peter D White in Qualitative Health Research Vol 31, Issue 2, 2021 [doi.org\/10.1177\/1049732320969395] &nbsp; Research abstract: Little is &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/sick-of-the-sick-role-narratives-of-what-recovery-means-to-people-with-cfs-me\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[6277,400,6282,3836,1938,743,6618,6619,296],"class_list":["post-28754","post","type-post","status-publish","format-standard","hentry","category-news","tag-anna-cheshire","tag-chronic-illness","tag-damien-ridge","tag-dr-lucy-v-clark","tag-dr-peter-white","tag-recovery","tag-sick-rile","tag-sick-role","tag-stigma"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-7tM","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/28754","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=28754"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/28754\/revisions"}],"predecessor-version":[{"id":29910,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/28754\/revisions\/29910"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=28754"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=28754"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=28754"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}