{"id":29368,"date":"2021-01-13T02:51:58","date_gmt":"2021-01-13T02:51:58","guid":{"rendered":"https:\/\/wames.org.uk\/cms-english\/?p=29368"},"modified":"2021-01-13T02:53:24","modified_gmt":"2021-01-13T02:53:24","slug":"uk-me-charity-statement-on-the-covid-vaccine","status":"publish","type":"post","link":"https:\/\/wames.org.uk\/cms-english\/uk-me-charity-statement-on-the-covid-vaccine\/","title":{"rendered":"UK ME charity statement on the Covid vaccine"},"content":{"rendered":"<h2><strong>Forward-ME: <a href=\"http:\/\/www.forward-me.co.uk\/assets\/images\/site-wide\/December-2020-NEW-Statement-on-long-COVID-and-ME(2).pdf\" target=\"_blank\" rel=\"noopener\">ME charity statement on the Covid vaccine<\/a>, 12 January 2021<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<h3><strong>We are receiving a very high number of enquiries from people with M.E. asking if they should have the Covid-19 vaccine, and when they should expect to be offered it.<\/strong><\/h3>\n<p>&nbsp;<\/p>\n<p>The 25% M.E. Group, Action for M.E. and the ME Association have collaborated to agree the following statement, also being shared by Forward ME.<\/p>\n<p><img data-recalc-dims=\"1\" decoding=\"async\" class=\"aligncenter wp-image-29381 size-full lazyload\" data-src=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2021\/01\/Forward-ME-logo-mission.jpg?resize=717%2C127&#038;ssl=1\" alt=\"\" width=\"717\" height=\"127\" data-srcset=\"https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2021\/01\/Forward-ME-logo-mission.jpg?w=717&amp;ssl=1 717w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2021\/01\/Forward-ME-logo-mission.jpg?resize=300%2C53&amp;ssl=1 300w, https:\/\/i0.wp.com\/wames.org.uk\/cms-english\/wp-content\/uploads\/2021\/01\/Forward-ME-logo-mission.jpg?resize=150%2C27&amp;ssl=1 150w\" data-sizes=\"(max-width: 717px) 100vw, 717px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 717px; --smush-placeholder-aspect-ratio: 717\/127;\" \/><\/p>\n<p>Any vaccine which is approved will have been tested on people with long-term conditions,<br \/>\nincluding looking at whether there are any differences in how well the vaccine works in people with a range of (but not all) health conditions. However, at present we have no data from these clinical trials specifically relating to M.E.\/CFS.<\/p>\n<p>This means that vaccination must be an individual decision based on a clear understanding of the risks and benefits associated with it.<\/p>\n<p>COVID-19 can have serious, life-threatening and <a href=\"https:\/\/www.nhs.uk\/conditions\/coronavirus-covid-19\/long-term-effects-of-coronavirus-long-covid\/\" target=\"_blank\" rel=\"noopener\">potentially long-lasting complications,<\/a> and there is no way to know how the virus will affect you.<\/p>\n<p>While it is possible there might be a minor reaction to the vaccine, this will almost\u00a0 certainly be much less severe than catching Covid 19 itself, particularly for those severely affected.<\/p>\n<h3><strong>Potential risks are as follows:<\/strong><\/h3>\n<ul>\n<li>As with most vaccines, there is a risk that the Covid-19 vaccine will exacerbate symptoms, particularly those which overlap with commonly reported vaccine side-effects, eg. fatigue, fever, muscle pain. In his <a href=\"https:\/\/www.healthrising.org\/blog\/2021\/01\/03\/chronic-fatigue-fibromyalgia-experts-coronavirus-vaccine\/\" target=\"_blank\" rel=\"noopener\">summary of published vaccine research<\/a> Cort Johnson notes that every vaccine has produced more side effects after the second dose than the first; and more side effects in younger people (under 55 years) compared to older people. Anyone who experiences side-effects<br \/>\nshould report this to the Medicines and Healthcare products Regulatory Agency using its Yellow Card scheme.<\/li>\n<li>There is a very small possibility that more serious side-effects could become apparent over time, as more people have the vaccine. Some people with M.E. are taking a \u201cwait and see\u201d approach for this reason, while shielding carefully in the meantime.<\/li>\n<li>A very small number of people, with a past history of allergic reactions, have reported a severe allergic reaction to the Pfizer vaccine. UK government <a href=\"https:\/\/assets.publishing.service.gov.uk\/government\/uploads\/system\/uploads\/attachment_data\/file\/951155\/COVID-19_vaccination_programme_guidance_for_healthcare_workers_11_January_2021_V3.1.pdf\" target=\"_blank\" rel=\"noopener\">guidance for health professionals<\/a> sets out more information on this; see also <a href=\"https:\/\/www.anaphylaxis.org.uk\/covid-19-advice\/pfizer-covid-19-vaccine-and-allergies\/\" target=\"_blank\" rel=\"noopener\">Anaphylaxis Campaign information<\/a>.<\/li>\n<\/ul>\n<p>Priority group 6 as listed by the <a href=\"https:\/\/www.gov.uk\/government\/publications\/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-30-december-2020\/joint-committee-on-vaccination-and-immunisation-advice-on-priority-groups-for-covid-19-vaccination-30-december-2020\" target=\"_blank\" rel=\"noopener\">Joint Committee on Vaccination and Immunisation<\/a> (JCVI) includes people with \u201cunderlying health conditions which put them at higher risk of serious disease and mortality.\u201d The main risk groups identified by the committee include \u201cchronic neurological disease\u201d and we believe this includes M.E. The ME Association has written to the Chief Medical Officer for England, Prof Chris Witty, to seek confirmation.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Forward-ME: ME charity statement on the Covid vaccine, 12 January 2021 &nbsp; We are receiving a very high number of enquiries from people with M.E. asking if they should have the Covid-19 vaccine, and when they should expect to be &hellip; <a href=\"https:\/\/wames.org.uk\/cms-english\/uk-me-charity-statement-on-the-covid-vaccine\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[5684,545,1681],"class_list":["post-29368","post","type-post","status-publish","format-standard","hentry","category-news","tag-covid-19","tag-forward-me-group","tag-vaccine"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p5qkYK-7DG","_links":{"self":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/29368","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/comments?post=29368"}],"version-history":[{"count":4,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/29368\/revisions"}],"predecessor-version":[{"id":29383,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/posts\/29368\/revisions\/29383"}],"wp:attachment":[{"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/media?parent=29368"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/categories?post=29368"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wames.org.uk\/cms-english\/wp-json\/wp\/v2\/tags?post=29368"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}